Data sharing in cancer research: perceived risks and the consequences of not sharing

[...]competition between researchers fuels a reluctance to share data, for fear that some unearthed discovery would be lost to others when the data is shared openly.2 Meanwhile, the frustration of patients upon learning that their data have been willfully withheld in the hopes of advancing the caree...

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Bibliographic Details
Published in:The lancet oncology 2024-03, Vol.25 (3), p.275-276
Main Authors: Topham, James T, Lawlor, Rita T, Lemaire, Diana, Casolino, Raffaella, Biankin, Andrew V
Format: Article
Language:English
Subjects:
Cancer research
Frustration
General Data Protection Regulation
Humans
Information Dissemination
Information sharing
Medical research
Neoplasms - epidemiology
Neoplasms - therapy
Oncology
Open data
Patients
Privacy
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Summary:[...]competition between researchers fuels a reluctance to share data, for fear that some unearthed discovery would be lost to others when the data is shared openly.2 Meanwhile, the frustration of patients upon learning that their data have been willfully withheld in the hopes of advancing the career of individual scientists cannot be overstated. Research data do not align to this same system, and instead open data sharing is blocked upfront, which continually impedes the advancement of health care. Researchers, patients, and health-care systems are now realising the human cost and risks of not sharing data.
ISSN:1470-2045
1474-5488
DOI:10.1016/S1470-2045(24)00021-4