Encounters with public and professional understandings of Down syndrome: A qualitative study of parents' experiences

Background The meanings of neurodevelopmental conditions are socially and culturally defined. We explored how parents of a child with Down syndrome experienced public and professional understandings of Down syndrome. Method Qualitative interviews with 25 parents of a child with Down syndrome living...

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Bibliographic Details
Published in:Journal of applied research in intellectual disabilities 2024-05, Vol.37 (3), p.e13221-n/a
Main Authors: Steffensen, Ellen H., Santoro, Stephanie L., Pedersen, Lars H., Vogel, Ida, Lou, Stina
Format: Article
Language:English
Subjects:
attitudes
developmental disabilities
Down syndrome
health knowledge
health services
Intellectual disabilities
Knowledge
Medical personnel
parenting
Parents & parenting
practice
Public opinion
Qualitative research
social services
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Summary:Background The meanings of neurodevelopmental conditions are socially and culturally defined. We explored how parents of a child with Down syndrome experienced public and professional understandings of Down syndrome. Method Qualitative interviews with 25 parents of a child with Down syndrome living in Denmark. From a reflexive thematic analysis, we developed themes describing understandings (i.e., attitudes or perceptions) of Down syndrome. Results The parents experienced that the Down syndrome diagnosis acted as a ‘label’; this had perceived positive and negative consequences for the child. The parents felt others understood Down syndrome as severe and undesirable. This attitude was tied to the existence of prenatal screening. Finally, to the parents, professional support for their child expressed an understanding of children with Down syndrome as valued individuals. Conclusions Parents encountered ambiguous understandings of Down syndrome. This should be recognised by professionals who may shape such understandings.
ISSN:1360-2322
1468-3148
DOI:10.1111/jar.13221