The usefulness of patient-reported outcome measures in decision making in Chagas cardiomyopathy: a scoping review

• Published in: Transactions of the Royal Society of Tropical Medicine and Hygiene 2024-08, Vol.118 (8), p.491-497
• Main Authors: Silva, Whesley Tanor, Silva, Keity Lamary Souza, Xavier, Diego Mendes, Ribeiro Ávila, Matheus, de Oliveira, Lucas Frois Fernandes, Colicchio, Vittor de Moura, de Almeida, Igor Lucas Geraldo Izalino, Bastone, Alessandra de Carvalho, Alcantara, Marcus Alessandro, Lacerda, Ana Cristina Rodrigues, Lima, Vanessa Pereira, de Oliveira, Luciano Fonseca Lemos, Mediano, Mauro Felippe Felix, Figueiredo, Pedro Henrique Scheidt, Costa, Henrique Silveira
• Format: Article
• Language: English
• ISSN: 0035-9203; 1878-3503; 1878-3503
• DOI: 10.1093/trstmh/trae025

Abstract Chagas cardiomyopathy (ChC) presents many biopsychosocial complexities, highlighting the need to have patient self-report questions. This study demonstrates the scope of the use of patient-reported outcome measures (PROMs) in patients with ChC and highlights the main research gaps. This is a scoping review and the search strategy was performed in the Online Medical Literature Analysis and Retrieval System (MEDLINE), Excerpta Medica database (EMBASE), Accumulated Index of Nursing and Allied Health Literature (CINAHL), Cochrane Central, Latin American Literature and Caribbean in Health Sciences (LILACS) and Diagnostic Test Accuracy (DITA). The search identified 4484 studies and 20 studies met the inclusion criteria. The Short-Form of 36 items (SF-36) had potential prognostic value and the ability to identify systolic dysfunction. The Human Activity Profile was able to screen for functional impairment, and the New York Heart Association showed potential prognostic value. The SF-36 and Minnesota Living with Heart Failure Questionnaire were responsive to interventions. The pharmaceutical care affected adherence to treatment as assessed by the Morisky score and also for SF-36. Despite the increased use of PROMs, there are still a large number of gaps in the literature, and further studies using PROMs are needed.