Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single center

Purpose Adolescents and young adults (AYA) with cancer require highly individualized, age-specific end-of-life care. This study identified the characteristics of AYA patients with cancer receiving home-based palliative care and explored their unique needs and challenges compared with other age group...

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Bibliographic Details
Published in:Supportive care in cancer 2024-11, Vol.32 (11), p.748, Article 748
Main Authors: Watanabe, Hirofumi, Watanabe, Akifumi, Fujikawa, Koichi, Furuya, Mitsuru, Goto, Hiroaki, Iida, Akiko, Kosugi, Yoriko, Kumagai, Yumiko, Murakami, Akiko, Sakuma, Eri, Takagi, Kei, Kawauchi, Junya, Gyoda, Yasuaki, Watanabe, Junko
Format: Article
Language:English
Subjects:
Adolescent
Adult
Age Factors
Age groups
Aged
Anesthesia
Cancer
Cohort Studies
Female
Home Care Services
Humans
Male
Medical records
Medicine
Medicine & Public Health
Middle Aged
Neoplasms - therapy
Nursing
Nursing Research
Oncology
Pain Medicine
Palliative care
Palliative Care - methods
Rehabilitation Medicine
Retrospective Studies
Teenagers
Terminal Care - methods
Young Adult
Young adults
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Summary:Purpose Adolescents and young adults (AYA) with cancer require highly individualized, age-specific end-of-life care. This study identified the characteristics of AYA patients with cancer receiving home-based palliative care and explored their unique needs and challenges compared with other age groups. Methods This retrospective cohort study analyzed the medical records of AYA patients with cancer to compare home-based palliative care characteristics with those of older age groups. The study included 81 AYA patients with cancer aged 16–39 years who had received home palliative care at a single institution from 2013 to 2023. They were compared with 5,017 patients with cancer aged 40 years and older. Patient background, duration of home end-of-life care, sedation, and association with social factors were examined retrospectively from medical records. Results The median age of AYA patients with cancer was 34 years; 65.4% were female. The primary cancer sites were gastrointestinal (34.6%) and thoracic (23.5%), with 80.0% at Stage IV. The median home care duration was 28.5 days, shorter than that for older patients (40 days) ( p  
ISSN:0941-4355
1433-7339
1433-7339
DOI:10.1007/s00520-024-08946-w