Discordance Between Caregiver and Transplant Clinician Priorities Regarding Post‐Heart Transplant Education

ABSTRACT Background Patient and caregiver education following pediatric heart transplant (HTx) is a cornerstone of post‐HTx care. Despite the importance of post‐HTx education, there are no standardized guidelines for topics and content. Education practices vary across clinicians and centers. Patient...

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Bibliographic Details
Published in:Pediatric transplantation 2024-12, Vol.28 (8), p.e14895-n/a
Main Authors: Goldart, Evan M., McCormick, Amanda D., Lim, Heang M., Batazzi, Adriana, Yu, Sunkyung, Duimstra, Ashley, Lowery, Ray, Uzark, Karen, Glenn, Thomas, Cousino, Melissa K.
Format: Article
Language:English
Subjects:
Adolescent
Adult
Caregivers
Caregivers - education
Cross-Sectional Studies
Discordance
Education
Female
heart transplant
Heart Transplantation
Heart transplants
Humans
Male
Middle Aged
Patient Education as Topic
pediatric
Pediatrics
Surveys
Surveys and Questionnaires
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Summary:ABSTRACT Background Patient and caregiver education following pediatric heart transplant (HTx) is a cornerstone of post‐HTx care. Despite the importance of post‐HTx education, there are no standardized guidelines for topics and content. Education practices vary across clinicians and centers. Patient and caregiver priorities regarding post‐HTx education are unknown. This national survey study aimed to characterize adolescent HTx recipient, caregiver, and clinician values specific to post‐HTx educational topics. Methods A cross‐sectional, national electronic survey was performed. Eligible participants included pediatric HTx recipients between the ages of 13–18, adult caregivers of pediatric HTx recipients, and pediatric HTx clinicians. An investigator‐designed survey was developed to assess the importance of 20 educational topics. Average scores on educational topics were compared between HTx recipients/caregivers and HTx clinicians using two‐sample t‐tests. Results 120 survey responses were included, with a majority completed by HTx caregivers (N = 73; 61%) and clinicians (N = 43; 36%). Of the 20 educational topics assessed, there was a significant difference (p 
ISSN:1397-3142
1399-3046
1399-3046
DOI:10.1111/petr.14895