From data collection to downstream data use: Malaysia's experience with ICD-11

• Published in: Health information management 2024-11, p.18333583241295717
• Main Authors: Ooi, Erwyn Chin Wei, Md Isa, Zaleha, Abdul Manaf, Mohd Rizal, Ahmad Fuad, Ahmad Soufi, Sidek, Hammad Fahli, Mustapa, Mimi Nurakmal, Ahmad, Azman, Ali, Fawzi Zaidan, Kharie, Mohamad Fadli, Shith, Shahidah Adilah, Mohd Marzuki, Nuraidah
• Format: Article
• Language: English
• ISSN: 1833-3583; 1833-3575; 1833-3575
• DOI: 10.1177/18333583241295717

The transition of systems to the (ICD-11) allows access to comprehensive data that accurately portray the complexity of morbidity and mortality data in Malaysia. To demonstrate Malaysia's experience in implementing ICD-11, from data collection to downstream data use applications. We describe improvements to existing data source systems and downstream data applications. For non-HIS and HIS (ICD-10) systems, data were manually entered into the health management information system equipped with ICD-11 or automatically mapped from ICD-10 to ICD-11. Following these system improvements, we collected and reported ICD-11 data from all hospitals nationwide, regardless of the individual systems' status in ICD-11 use. Lessons learnt related to legacy systems; ICD-11 releases and system updates; mapping; reporting; human resources and related applications. With careful planning, standardisation of the collection and use of ICD-11 data can be accomplished with limited resources and in a complex environment with heterogeneous systems. Use of ICD-11 data in downstream data applications improves data quality to answer specific business or research questions.