Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire

Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with D...

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Bibliographic Details
Published in:Journal of pediatric psychology 2009-01, Vol.34 (1), p.69-78
Main Authors: Hendriksen, Jos G. M., Poysky, James T., Schrans, Debby G. M., Schouten, Eric G. W., Aldenkamp, Albert P., Vles, Johan S. H.
Format: Article
Language:English
Subjects:
Activities of Daily Living - psychology
Adaptation, Psychological
Adolescent
Adrenal Cortex Hormones - adverse effects
Adrenal Cortex Hormones - therapeutic use
Age Factors
Anxiety - diagnosis
Anxiety - psychology
Biological and medical sciences
Child
Child clinical studies
Child, Preschool
Depression - diagnosis
Depression - psychology
Diseases of striated muscles. Neuromuscular diseases
Duchenne muscular dystrophy
Humans
Male
Mass Screening
Medical sciences
Muscular Dystrophy, Duchenne - drug therapy
Muscular Dystrophy, Duchenne - psychology
Neurology
Peer Group
Personality Assessment - statistics & numerical data
Psychology. Psychoanalysis. Psychiatry
Psychometrics - statistics & numerical data
Psychopathology. Psychiatry
psychosocial adjustment
Quality of Life - psychology
questionnaire study
Reproducibility of Results
Sick Role
Social Adjustment
Statistics as Topic
Surveys and Questionnaires
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Items that cite this one
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Summary:Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with DMD aged 5–18 years completed the PARS-III and Revised Rutter Scale. Results The α coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. Conclusions The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.
ISSN:0146-8693
1465-735X
DOI:10.1093/jpepsy/jsn067