THE LAST MILE OF THE WAY: UNDERSTANDING CAREGIVING IN AFRICAN AMERICAN FAMILIES AT THE END-OF-LIFE

This research is based on in‐depth ethnographic interviewas and focus groups with 88 African American family caregivers from various regions of the United States during a stressful time in their family development‐caregiving at the end‐of‐life‐and the grieving during the aftermath. The study employe...

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Bibliographic Details
Published in:Journal of marital and family therapy 2004-10, Vol.30 (4), p.427-438
Main Authors: Turner, William L., Wallace, Beverly R., Anderson, Jared R., Bird, Carolyn
Format: Article
Language:English
Subjects:
African American Community
African American Family
African Americans
African Americans - psychology
African Americans - statistics & numerical data
Attitude to Death
Beliefs
Black American people
Caregivers
Caregivers - psychology
Caregivers - statistics & numerical data
Carers
Community Relations
Community Services
Comparative Analysis
Coping
Death & dying
Elder care
Ethnic Groups
Families & family life
Family Counseling
Family Involvement
Family Relations
Family Therapy - methods
Female
Focus Groups
Georgia - epidemiology
Grief
Health Services Needs and Demand
Hearing
Hospices (Terminal Care)
Humans
Illinois - epidemiology
Interviews
Male
Minnesota - epidemiology
Minority Groups
Modeling (Psychology)
New York - epidemiology
North Carolina - epidemiology
Nursing Homes
Patient Acceptance of Health Care - ethnology
Patient Acceptance of Health Care - statistics & numerical data
Psychotherapy
Racism
Research Methodology
Residential Institutions
Resistance (Psychology)
Respite Care - psychology
Respite Care - statistics & numerical data
Sampling
Social Support
Socioeconomic Factors
Statistical Analysis
Surveys and Questionnaires
Values
Whites
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Summary:This research is based on in‐depth ethnographic interviewas and focus groups with 88 African American family caregivers from various regions of the United States during a stressful time in their family development‐caregiving at the end‐of‐life‐and the grieving during the aftermath. The study employed a stratified purposeful sampling strategy. Subjects were African Americans from the Northern, Southern, and Midwestern United States. Forman care is complicated by the distrust that many African Americans hold toward the health care system, which has resulted from years of exclusion, racism and discrimination. The findings highlight the importannce of hearing from African American families to gain an understanding of what services, including family therapy and other psychotherapy, they will need during this process.
ISSN:0194-472X
1752-0606
DOI:10.1111/j.1752-0606.2004.tb01253.x