Perspectives on use and protection of genetic information in work settings: results of a preliminary study

The societal use of genetic information raises ethical concerns, and the views of working persons regarding genetic information have received little attention. We performed an empirical project to characterize perspectives of 63 employees at two sites who expressed strong interest in learning about...

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Bibliographic Details
Published in:Social science & medicine (1982) 2005-04, Vol.60 (8), p.1855-1858
Main Authors: Roberts, Laura Weiss, Geppert, Cynthia M.A., Warner, Teddy D., Green Hammond, Katherine A., Rogers, Melinda, Smrcka, Julienne, Roberts, Brian B.
Format: Article
Language:English
Subjects:
Access to information
Adult
Attitude to Health
Bioethics
Biological and medical sciences
Confidentiality
Disclosure
Employees
Ethics
Female
Genetic data
Genetic Privacy - psychology
Genetic Testing - psychology
Genetics
Genetics Confidentiality Ethics USA
Humans
Information
Insurance Carriers
Male
Medical Records Systems, Computerized
Medical sciences
Miscellaneous
Opinions
Personal information
Public health. Hygiene
Public health. Hygiene-occupational medicine
Surveys and Questionnaires
U.S.A
United States of America
USA
Workplace
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Summary:The societal use of genetic information raises ethical concerns, and the views of working persons regarding genetic information have received little attention. We performed an empirical project to characterize perspectives of 63 employees at two sites who expressed strong interest in learning about and protecting their personal genetic information. Genetic data were seen as more sensitive than other health data, and disclosure of genetic susceptibility was perceived as having negative consequences. This study suggests the value of exploring the perspectives of key stakeholders most directly affected by genetic applications across diverse societal settings.
ISSN:0277-9536
1873-5347
DOI:10.1016/j.socscimed.2004.08.038