The Psychosocial Impact of Bladder Exstrophy in Adolescence

Abstract Purpose To examine the experiences of young people living with bladder exstrophy. Methods Qualitative interviews with 16 adolescents aged 16–21 years, exploring the psychological and social impact of bladder exstrophy. Results Participants described difficulties, solutions, and practical as...

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Bibliographic Details
Published in:Journal of adolescent health 2007-11, Vol.41 (5), p.504-508
Main Authors: Wilson, Christine J., D.Clin.Psych, Pistrang, Nancy, Ph.D, Woodhouse, Christopher R.J., M.B., FRCS, FEBU, Christie, Deborah, Ph.D
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adolescence
Adolescent
Adolescents
Adult
Biological and medical sciences
Bladder disorders
Bladder exstrophy
Bladder Exstrophy - psychology
Coitus
Coping
Female
Fundamental and applied biological sciences. Psychology
Humans
Illness and personality
Illness, stress and coping
Interpersonal Relations
Interviews as Topic
Male
Malformations of the urinary system
Medical sciences
Nephrology. Urinary tract diseases
Pediatrics
Psychology and medicine
Psychology. Psychoanalysis. Psychiatry
Psychology. Psychophysiology
Psychosocial Deprivation
Psychosocial factors
Psychosocial impact
Qualitative methodology
Social impact
Urinary system involvement in other diseases. Miscellaneous
Urinary tract. Prostate gland
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Summary:Abstract Purpose To examine the experiences of young people living with bladder exstrophy. Methods Qualitative interviews with 16 adolescents aged 16–21 years, exploring the psychological and social impact of bladder exstrophy. Results Participants described difficulties, solutions, and practical assistance needed to manage living with bladder exstrophy. Participants identified practical difficulties, their identities, and relationships as the three main areas of importance. They discussed challenges associated with disclosing the nature of their condition, being bullied, and sexual relationships. Despite the difficulties and challenges described, young people repeatedly expressed a determination to live their lives as normally as their peers did. Conclusion Many examples of difficulties experienced in the past and the present are described. Young people report a range of creative coping strategies used to respond to the demands of living with a chronic health condition.
ISSN:1054-139X
1879-1972
DOI:10.1016/j.jadohealth.2007.05.021