The Lifeways Cross-Generation Study: design, recruitment and data management considerations

The Lifeways Cross-Generation Cohort Study was first established in 2001 and is a unique longitudinal database in Ireland, with currently over three and a half thousand family participants derived from 1124 mothers recruited initially during pregnancy, mainly during 2002. The database comprises a) b...

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Bibliographic Details
Published in:Irish medical journal 2007-09, Vol.100 (8), p.suppl 3-suppl 6
Main Authors: O'Mahony, D, Fallon, U B, Hannon, F, Kloeckner, K, Avalos, G, Murphy, A W, Kelleher, C C
Format: Article
Language:English
Subjects:
Adult
Age Factors
Aged
Aged, 80 and over
Database Management Systems
Family Characteristics
Family Health
Family Practice - statistics & numerical data
Female
Health Status Indicators
Hospitalization - statistics & numerical data
Humans
Ireland
Longitudinal Studies
Male
Middle Aged
Patient Selection
Prospective Studies
Public Health Informatics
Surveys and Questionnaires
Vaccination - utilization
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Summary:The Lifeways Cross-Generation Cohort Study was first established in 2001 and is a unique longitudinal database in Ireland, with currently over three and a half thousand family participants derived from 1124 mothers recruited initially during pregnancy, mainly during 2002. The database comprises a) baseline self-reported health data for all mothers, a third of fathers and at least one grandparent b) clinical hospital data at recruitment, c) three year follow-up data from the families' General Practitioners, and d) linkage to hospital and vaccination databases. Data collection for the five-year follow-up with parents is underway, continuing through 2007. Because there is at present no single national/regional health information system in Ireland, original data instruments were designed to capture data directly from family members and through their hospitals and healthcare providers. A system of relational databases was designed to coordinate data capture for a complex array of study instruments and to facilitate tracking of family members at different time points.
ISSN:0332-3102