Family functioning in the caregivers of patients with dementia : One-year follow-up

• Published in: Bulletin of the Menninger Clinic 2006, Vol.70 (3), p.222-231
• Main Authors: HERU, Alison M, RYAN, Christine E
• Format: Article
• Language: English
• Subjects: Adult; Aged; Aged, 80 and over; Biological and medical sciences; Caregivers - psychology; Carers; Caretaker syndrome; Cost of Illness; Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases; Dementia; Dementia - psychology; Dementia - therapy; Demography; Family - psychology; Family functioning; Family stress; Female; Follow-Up Studies; Humans; Male; Medical sciences; Middle Aged; Neurology; Psychology. Psychoanalysis. Psychiatry; Psychopathology. Psychiatry; Spouses; Surveys and Questionnaires
• ISSN: 0025-9284; 1943-2828
• DOI: 10.1521/bumc.2006.70.3.222

Caregivers for relatives with dementia can maintain their quality of life without specific intervention. It is unclear which variables are protective and which variables are aggravating for the caregiver. To assess the impact of family functioning on caregiver burden over time, the authors had caregivers of out patients with dementia complete self-report questionnaires at recruitment and at 1 year. At recruitment, 63% of caregivers were female, with a mean age of 62 years. Mean patient age was 73 years. The average number of caregiving years was 3.1. Caregivers were more likely to be spouses (61%). After 1-year, caregivers who stayed in the study reported no change in burden, reward, quality of life, or overall family functioning, although the patient's activities of daily living and level of disability were perceived to have significantly deteriorated. Caregivers who reported poor family functioning at initial assessment had higher ratings of strain and burden.