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Unmet Care Needs and Key Outcomes in Dementia
Objectives: To determine how unmet needs for activity of daily living tasks influenced nursing home placement, death, or loss to follow‐up in dementia. Design: An 18‐month longitudinal design, with interviews administered every 6 months. Setting: Eight catchment areas in the United States. Participa...
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| Published in: | Journal of the American Geriatrics Society (JAGS) 2005-12, Vol.53 (12), p.2098-2105 |
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| Main Authors: | , , , |
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| Language: | English |
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| cites | cdi_FETCH-LOGICAL-c5465-fec1149ef8f2fddd8d49b05c809c1d8c28446fceea6bbd22f8f6eecc73fecd03 |
| container_end_page | 2105 |
| container_issue | 12 |
| container_start_page | 2098 |
| container_title | Journal of the American Geriatrics Society (JAGS) |
| container_volume | 53 |
| creator | Gaugler, Joseph E. Kane, Robert L. Kane, Rosalie A. Newcomer, Robert |
| description | Objectives: To determine how unmet needs for activity of daily living tasks influenced nursing home placement, death, or loss to follow‐up in dementia.
Design: An 18‐month longitudinal design, with interviews administered every 6 months.
Setting: Eight catchment areas in the United States.
Participants: Five thousand eight hundred thirty‐one dementia patients and their caregivers were included at baseline.
Measurements: Measures of sociodemographic context of care; functional, cognitive, and behavioral status of care recipients; caregiver stress and well‐being; and formal and informal resources served as covariates. The independent variables of interest were unweighted unmet care need scores and unmet need scores weighted by importance and severity in a prior sample of older consumers of long‐term care. Outcomes included nursing home placement, death, and loss to follow‐up.
Results: Cox regression models suggested that greater unmet need was predictive of nursing home placement, death, and loss to follow‐up. These results were apparent when the unweighted and the weighted scores for unmet need with activity of daily living dependencies were used.
Conclusion: Unmet need may be useful in identifying dementia care recipients at risk for nursing home placement and death. Further study of unmet need is needed to effectively assess and target intervention protocols during the course of dementia. |
| doi_str_mv | 10.1111/j.1532-5415.2005.00495.x |
| format | article |
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Design: An 18‐month longitudinal design, with interviews administered every 6 months.
Setting: Eight catchment areas in the United States.
Participants: Five thousand eight hundred thirty‐one dementia patients and their caregivers were included at baseline.
Measurements: Measures of sociodemographic context of care; functional, cognitive, and behavioral status of care recipients; caregiver stress and well‐being; and formal and informal resources served as covariates. The independent variables of interest were unweighted unmet care need scores and unmet need scores weighted by importance and severity in a prior sample of older consumers of long‐term care. Outcomes included nursing home placement, death, and loss to follow‐up.
Results: Cox regression models suggested that greater unmet need was predictive of nursing home placement, death, and loss to follow‐up. These results were apparent when the unweighted and the weighted scores for unmet need with activity of daily living dependencies were used.
Conclusion: Unmet need may be useful in identifying dementia care recipients at risk for nursing home placement and death. Further study of unmet need is needed to effectively assess and target intervention protocols during the course of dementia.</description><identifier>ISSN: 0002-8614</identifier><identifier>EISSN: 1532-5415</identifier><identifier>DOI: 10.1111/j.1532-5415.2005.00495.x</identifier><identifier>PMID: 16398893</identifier><identifier>CODEN: JAGSAF</identifier><language>eng</language><publisher>Malden, USA: Blackwell Science Inc</publisher><subject>Activities ; Activities of Daily Living ; Aged ; Biological and medical sciences ; Care ; Caregivers ; caregiving ; Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases ; Dementia ; Dementia - diagnosis ; Dementia - mortality ; Female ; General aspects ; Geriatrics ; Humans ; Institutionalization ; Longitudinal Studies ; Male ; Medical sciences ; Middle Aged ; Needs Assessment ; Neurology ; nursing home placement ; Nursing Homes ; Older people ; Outcomes ; Patient Care Planning ; Prognosis ; Proportional Hazards Models ; Survival Analysis ; United States - epidemiology ; unmet need ; Unmet Needs</subject><ispartof>Journal of the American Geriatrics Society (JAGS), 2005-12, Vol.53 (12), p.2098-2105</ispartof><rights>2006 INIST-CNRS</rights><rights>2005 by the American Geriatrics Society</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5465-fec1149ef8f2fddd8d49b05c809c1d8c28446fceea6bbd22f8f6eecc73fecd03</citedby><cites>FETCH-LOGICAL-c5465-fec1149ef8f2fddd8d49b05c809c1d8c28446fceea6bbd22f8f6eecc73fecd03</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925,31000</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=17346035$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/16398893$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Gaugler, Joseph E.</creatorcontrib><creatorcontrib>Kane, Robert L.</creatorcontrib><creatorcontrib>Kane, Rosalie A.</creatorcontrib><creatorcontrib>Newcomer, Robert</creatorcontrib><title>Unmet Care Needs and Key Outcomes in Dementia</title><title>Journal of the American Geriatrics Society (JAGS)</title><addtitle>J Am Geriatr Soc</addtitle><description>Objectives: To determine how unmet needs for activity of daily living tasks influenced nursing home placement, death, or loss to follow‐up in dementia.
Design: An 18‐month longitudinal design, with interviews administered every 6 months.
Setting: Eight catchment areas in the United States.
Participants: Five thousand eight hundred thirty‐one dementia patients and their caregivers were included at baseline.
Measurements: Measures of sociodemographic context of care; functional, cognitive, and behavioral status of care recipients; caregiver stress and well‐being; and formal and informal resources served as covariates. The independent variables of interest were unweighted unmet care need scores and unmet need scores weighted by importance and severity in a prior sample of older consumers of long‐term care. Outcomes included nursing home placement, death, and loss to follow‐up.
Results: Cox regression models suggested that greater unmet need was predictive of nursing home placement, death, and loss to follow‐up. These results were apparent when the unweighted and the weighted scores for unmet need with activity of daily living dependencies were used.
Conclusion: Unmet need may be useful in identifying dementia care recipients at risk for nursing home placement and death. Further study of unmet need is needed to effectively assess and target intervention protocols during the course of dementia.</description><subject>Activities</subject><subject>Activities of Daily Living</subject><subject>Aged</subject><subject>Biological and medical sciences</subject><subject>Care</subject><subject>Caregivers</subject><subject>caregiving</subject><subject>Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases</subject><subject>Dementia</subject><subject>Dementia - diagnosis</subject><subject>Dementia - mortality</subject><subject>Female</subject><subject>General aspects</subject><subject>Geriatrics</subject><subject>Humans</subject><subject>Institutionalization</subject><subject>Longitudinal Studies</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Needs Assessment</subject><subject>Neurology</subject><subject>nursing home placement</subject><subject>Nursing Homes</subject><subject>Older people</subject><subject>Outcomes</subject><subject>Patient Care Planning</subject><subject>Prognosis</subject><subject>Proportional Hazards Models</subject><subject>Survival Analysis</subject><subject>United States - epidemiology</subject><subject>unmet need</subject><subject>Unmet Needs</subject><issn>0002-8614</issn><issn>1532-5415</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2005</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNqN0VuLEzEYBuAgiltX_4IMgt7N-OU4GfBGqtuqS9fDyl6GNPkGps5hTWbY9t-b2rIL3tTcJJDnDUleQjIKBU3j7aagkrNcCioLBiALAFHJYvuIzO43HpMZALBcKyrOyLMYNwCUgdZPyRlVvNK64jOS_-w7HLO5DZitEH3MbO-zL7jLrqbRDR3GrOmzD9hhPzb2OXlS2zbii-N8Tq4vPl7Pl_nl1eLT_P1l7qRQMq_RUSoqrHXNau-99qJag3QaKke9dkwLoWqHaNV67RlLTiE6V_KU9MDPyZvDsbdh-D1hHE3XRIdta3scpmhUBUoIyU5CWVJGlSwTfPUP3AxT6NMbDKPAS8m1OomASnEaAaUJ6QNyYYgxYG1uQ9PZsDMUzL5BszH7osy-KLNv0Pxt0GxT9OXx_GndoX8IHitL4PUR2OhsWwfbuyY-uJILBVwm9-7g7poWd_99AfN58SMtUjw_xJs44vY-bsMvo8r0YeZmtTA3_Pty-W01N1_5H3tjwjo</recordid><startdate>200512</startdate><enddate>200512</enddate><creator>Gaugler, Joseph E.</creator><creator>Kane, Robert L.</creator><creator>Kane, Rosalie A.</creator><creator>Newcomer, Robert</creator><general>Blackwell Science Inc</general><general>Blackwell</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>7TK</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7QJ</scope><scope>7X8</scope></search><sort><creationdate>200512</creationdate><title>Unmet Care Needs and Key Outcomes in Dementia</title><author>Gaugler, Joseph E. ; Kane, Robert L. ; Kane, Rosalie A. ; Newcomer, Robert</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5465-fec1149ef8f2fddd8d49b05c809c1d8c28446fceea6bbd22f8f6eecc73fecd03</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2005</creationdate><topic>Activities</topic><topic>Activities of Daily Living</topic><topic>Aged</topic><topic>Biological and medical sciences</topic><topic>Care</topic><topic>Caregivers</topic><topic>caregiving</topic><topic>Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases</topic><topic>Dementia</topic><topic>Dementia - diagnosis</topic><topic>Dementia - mortality</topic><topic>Female</topic><topic>General aspects</topic><topic>Geriatrics</topic><topic>Humans</topic><topic>Institutionalization</topic><topic>Longitudinal Studies</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Needs Assessment</topic><topic>Neurology</topic><topic>nursing home placement</topic><topic>Nursing Homes</topic><topic>Older people</topic><topic>Outcomes</topic><topic>Patient Care Planning</topic><topic>Prognosis</topic><topic>Proportional Hazards Models</topic><topic>Survival Analysis</topic><topic>United States - epidemiology</topic><topic>unmet need</topic><topic>Unmet Needs</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Gaugler, Joseph E.</creatorcontrib><creatorcontrib>Kane, Robert L.</creatorcontrib><creatorcontrib>Kane, Rosalie A.</creatorcontrib><creatorcontrib>Newcomer, Robert</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>Neurosciences Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of the American Geriatrics Society (JAGS)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Gaugler, Joseph E.</au><au>Kane, Robert L.</au><au>Kane, Rosalie A.</au><au>Newcomer, Robert</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Unmet Care Needs and Key Outcomes in Dementia</atitle><jtitle>Journal of the American Geriatrics Society (JAGS)</jtitle><addtitle>J Am Geriatr Soc</addtitle><date>2005-12</date><risdate>2005</risdate><volume>53</volume><issue>12</issue><spage>2098</spage><epage>2105</epage><pages>2098-2105</pages><issn>0002-8614</issn><eissn>1532-5415</eissn><coden>JAGSAF</coden><abstract>Objectives: To determine how unmet needs for activity of daily living tasks influenced nursing home placement, death, or loss to follow‐up in dementia.
Design: An 18‐month longitudinal design, with interviews administered every 6 months.
Setting: Eight catchment areas in the United States.
Participants: Five thousand eight hundred thirty‐one dementia patients and their caregivers were included at baseline.
Measurements: Measures of sociodemographic context of care; functional, cognitive, and behavioral status of care recipients; caregiver stress and well‐being; and formal and informal resources served as covariates. The independent variables of interest were unweighted unmet care need scores and unmet need scores weighted by importance and severity in a prior sample of older consumers of long‐term care. Outcomes included nursing home placement, death, and loss to follow‐up.
Results: Cox regression models suggested that greater unmet need was predictive of nursing home placement, death, and loss to follow‐up. These results were apparent when the unweighted and the weighted scores for unmet need with activity of daily living dependencies were used.
Conclusion: Unmet need may be useful in identifying dementia care recipients at risk for nursing home placement and death. Further study of unmet need is needed to effectively assess and target intervention protocols during the course of dementia.</abstract><cop>Malden, USA</cop><pub>Blackwell Science Inc</pub><pmid>16398893</pmid><doi>10.1111/j.1532-5415.2005.00495.x</doi><tpages>8</tpages></addata></record> |
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| ispartof | Journal of the American Geriatrics Society (JAGS), 2005-12, Vol.53 (12), p.2098-2105 |
| issn | 0002-8614 1532-5415 |
| language | eng |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley |
| subjects | Activities Activities of Daily Living Aged Biological and medical sciences Care Caregivers caregiving Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases Dementia Dementia - diagnosis Dementia - mortality Female General aspects Geriatrics Humans Institutionalization Longitudinal Studies Male Medical sciences Middle Aged Needs Assessment Neurology nursing home placement Nursing Homes Older people Outcomes Patient Care Planning Prognosis Proportional Hazards Models Survival Analysis United States - epidemiology unmet need Unmet Needs |
| title | Unmet Care Needs and Key Outcomes in Dementia |
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