The impact of severe haemophilia on the social status and quality of life among Austrian haemophiliacs

• Published in: Haemophilia : the official journal of the World Federation of Hemophilia 2008-07, Vol.14 (4), p.703-708
• Main Authors: HARTL, H. K., REITTER, S., EIDHER, U., RAMSCHAK, H., AY, C., PABINGER, I.
• Format: Article
• Language: English
• Subjects: Adult; Austria; Case-Control Studies; Educational Status; Employment - statistics & numerical data; haemophilia; Health Status Indicators; Hemophilia A - rehabilitation; Humans; Male; Marital Status; Middle Aged; Quality of Life; Social Class; social status; Young Adult
• ISSN: 1351-8216; 1365-2516
• DOI: 10.1111/j.1365-2516.2008.01684.x

Although many studies of the impact of haemophilia on the quality of life were conducted, there is hardly any data on the social status of haemophiliacs. It was the aim of our study to obtain data on the social status of Austrian haemophiliacs and to compare these with an age‐ and sex‐matched reference population. Furthermore, we collected data on the quality of life of haemophilia patients. We conducted a case–control study in two Austrian haemophilia centres with 53 patients (mean age 36.7 ± 10.6 years) and 104 male controls (mean age 36.7 ± 11.1 years). Socio‐demographic data were collected using a standardized questionnaire and quality‐of‐life data using the SF‐36. More patients (56.6%) than controls (37.5%) were married (P = 0.023), whereas more controls (17.3%) than patients (3.8%) had a partner with whom they were not married (P = 0.016). The percentage having children was equivalent in both groups (47% and 41% respectively), but controls had more children (mean number 1.5 in patients and 2.1 in controls, P