Young people with spina bifida: Transfer from paediatric to adult health care

An expectation of health care for young people with disability is that quality coordinated care continues to be available as they pass from the paediatric to the adult health care system. While individual clinicians provide this service well, the widespread absence of coordinated multidisciplinary c...

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Bibliographic Details
Published in:Journal of paediatrics and child health 1998-10, Vol.34 (5), p.414-417
Main Authors: SAWYER, SM, COLLINS, N, BRYAN, D, BROWN, D, HOPE, MA, BOWES, G
Format: Article
Language:English
Subjects:
Adolescent
Adult
adult health care
Australia
Biological and medical sciences
Continuity of Patient Care - organization & administration
Health care
Hospitals, Pediatric - organization & administration
Humans
Interinstitutional Relations
Malformations of the nervous system
Medical sciences
Neurology
Paediatrics
Patient Satisfaction
Patient Transfer - organization & administration
Pilot Projects
Planning Techniques
Program Development
Program Evaluation
Rehabilitation Centers - organization & administration
Spina bifida
Spinal Dysraphism - therapy
Surveys and Questionnaires
transfer
Transition
Victoria
Young people
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Summary:An expectation of health care for young people with disability is that quality coordinated care continues to be available as they pass from the paediatric to the adult health care system. While individual clinicians provide this service well, the widespread absence of coordinated multidisciplinary care for young people with spina bifida in the adult health care system is a major deficiency. This paper describes the planning and implementation that underpinned the transfer of 10 young people with spina bifida from a paediatric to an adult service. The range of structural, financial and ‘cultural’ barriers that need to be overcome before patients can be successfully transferred is highlighted; lessons learned from this model may serve to facilitate the development of other transfer services.
ISSN:1034-4810
1440-1754
DOI:10.1046/j.1440-1754.1998.00265.x