Conducting End-of-Life Studies in Pediatric Oncology

Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and co...

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Bibliographic Details
Published in:Western journal of nursing research 2007-06, Vol.29 (4), p.448-465
Main Authors: Hinds, Pamela S., Burghen, Elizabeth A., Pritchard, Michele
Format: Article
Language:English
Subjects:
Clinical Nursing Research
Death & dying
Dying children
End of life decisions
Evidence based medicine
Humans
Nursing
Oncology
Oncology Nursing - ethics
Paediatrics
Palliative care
Pediatric Nursing
Pediatrics
Reproducibility of Results
Terminal Care
Terminal illnesses
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Summary:Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and complete clinically useful pediatric end-of-life studies in oncology. The article describes specific peer-review and methodological challenges and links those to evidence-based solutions. The challenges and solutions described in this article are from eight end-of-life studies involving pediatric oncology patients. It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents.
ISSN:0193-9459
1552-8456
DOI:10.1177/0193945906295533