Participation in the cooperative family registry for breast cancer studies: issues of informed consent

The recent identification of genes associated with high penetrance for breast cancer has brought a new focus to the study of cancer genetics and has created the need for the development of registries that are defined by familial cancers.

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Bibliographic Details
Published in:JNCI : Journal of the National Cancer Institute 2000-03, Vol.92 (6), p.452-456
Main Authors: Daly, M B, Offit, K, Li, F, Glendon, G, Yaker, A, West, D, Koenig, B, McCredie, M, Venne, V, Nayfield, S, Seminara, D
Format: Article
Language:English
Subjects:
Australia
Breast Neoplasms - diagnosis
Breast Neoplasms - economics
Breast Neoplasms - therapy
Canada
Cancer
Confidentiality
Family
Female
Genetics
Humans
Informed Consent
International Cooperation
Medical research
Registries
Risk
United States
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Description
Summary:The recent identification of genes associated with high penetrance for breast cancer has brought a new focus to the study of cancer genetics and has created the need for the development of registries that are defined by familial cancers.
ISSN:0027-8874
1460-2105
DOI:10.1093/jnci/92.6.452