Psychosocial issues in newborn screening for cystic fibrosis

Newborn screening for cystic fibrosis remains controversial because there is still little agreement that prophylactic interventions provide substantial long-term benefits. In such situations, where there are some medical benefits and the costs are not prohibitive, it is important to consider the psy...

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Bibliographic Details
Published in:Paediatric respiratory reviews 2003-12, Vol.4 (4), p.285-292
Main Authors: Parsons, Evelyn P, Bradley, Donald M
Format: Article
Language:English
Subjects:
carrier detection
cystic fibrosis
Cystic Fibrosis - diagnosis
Cystic Fibrosis - psychology
false positive
Family - psychology
Family Health
Humans
Infant, Newborn
Neonatal Screening - psychology
newborn screening
Parents - psychology
psychosocial
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Summary:Newborn screening for cystic fibrosis remains controversial because there is still little agreement that prophylactic interventions provide substantial long-term benefits. In such situations, where there are some medical benefits and the costs are not prohibitive, it is important to consider the psychosocial implications of screening. This paper reviews the evidence on the psychosocial issues raised by newborn screening for cystic fibrosis, in particular the issues of parental attitudes to screening, the evidence from families with an affected infant, the evidence from families with a carrier infant and the lessons for service delivery.
ISSN:1526-0542
1526-0550
DOI:10.1016/S1526-0542(03)00086-1