Completeness of state administrative databases for surveillance of congenital heart disease

BACKGROUND Tracking birth prevalence of cardiac defects is essential to determining time and space clusters, and identifying potential associated factors. Resource limitations on state birth defects surveillance programs sometimes require that databases already available be used for ascertaining suc...

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Bibliographic Details
Published in:Birth defects research. A Clinical and molecular teratology 2003-09, Vol.67 (9), p.597-603
Main Authors: Cronk, Christine E., Malloy, Marsha E., Pelech, Andrew N., Miller, Richard E., Meyer, Sally A., Cowell, Melissa, McCarver, D. Gail
Format: Article
Language:English
Subjects:
Birth Certificates
birth defects
congenital heart disease
Databases, Factual
Death Certificates
Heart Defects, Congenital - diagnosis
Heart Defects, Congenital - epidemiology
Hospitals, State
Humans
Infant, Newborn
Prevalence
Retrospective Studies
Sentinel Surveillance
State Government
surveillance
Wisconsin - epidemiology
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Summary:BACKGROUND Tracking birth prevalence of cardiac defects is essential to determining time and space clusters, and identifying potential associated factors. Resource limitations on state birth defects surveillance programs sometimes require that databases already available be used for ascertaining such defects. This study evaluated the data quality of state administrative databases for ascertaining congenital heart defects (CHD) and specific diagnoses of CHD. METHODS Children's Hospital of Wisconsin (CHW) medical records for infants born 1997–1999 and treated for CHD (n = 373) were ed and each case assigned CHD diagnoses based on definitive diagnostic reports (echocardiograms, catheterizations, surgical or autopsy reports). These data were linked to state birth and death records, and birth and postnatal (
ISSN:1542-0752
1542-0760
DOI:10.1002/bdra.10107