The development and utilisation of the European Organisation for research and treatment of cancer quality of life group item bank

One of the problems in assessing patients' quality of life (QL) is the availability of good robust measures that have demonstrated validity, reliability and sensitivity for changes over time, but also have been validated across a large group of culturally diverse nations. The European Organisat...

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Bibliographic Details
Published in:European journal of cancer (1990) 2002-08, Vol.38 (12), p.1611-1614
Main Authors: Bottomley, A, Vachalec, S, Bjordal, K, Blazeby, J, Flechtner, H, Ruyskart, P
Format: Article
Language:English
Subjects:
Biological and medical sciences
Computerized, statistical medical data processing and models in biomedicine
Databases, Factual - statistics & numerical data
Epidemiology
Europe
General aspects. Methods
Humans
Information
International Cooperation
Internet
Medical sciences
Neoplasms - therapy
Oncology
Organizations
Program Development
Quality of Life
Questionnaires
Tumors
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Summary:One of the problems in assessing patients' quality of life (QL) is the availability of good robust measures that have demonstrated validity, reliability and sensitivity for changes over time, but also have been validated across a large group of culturally diverse nations. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group (QLG) has recognised this and has established a substantial research programme with the aim of developing such tools, with particular relevance to cancer clinical trials. However, the management of a large set of items in multiple languages is difficult and very labour-intensive. Thus, to support the EORTC QLG research agenda, a computerised web-based database of all EORTC QLG measures and individual questionnaire items was developed. This database allows access to a pool of over 500 validated items in some 6000 translated versions. The database speeds up module development, ensures that questionnaires items have similar wording and provides rapid access to multiple translations.
ISSN:0959-8049
1879-0852
DOI:10.1016/S0959-8049(02)00125-9