Brief Report: Development of the Inflammatory Bowel Disease Family Responsibility Questionnaire

Objective To present psychometric data on youth and parent versions of the Inflammatory Bowel Disease-Family Responsibility Questionnaire (IBD-FRQ), a measure of family involvement in IBD management. Methods Fifty-eight adolescents with inflammatory bowel disease (IBD), along with 55 mothers and 26...

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Bibliographic Details
Published in:Journal of pediatric psychology 2010-03, Vol.35 (2), p.183-187
Main Authors: Greenley, Rachel Neff, Doughty, Alyssa, Stephens, Mike, Kugathasan, Subra
Format: Article
Language:English
Subjects:
Adolescent
Age Factors
chronic illness
Decision Making
Family - psychology
family functioning
Father-Child Relations
Female
gastroenterology
Humans
inflammatory bowel disease
Inflammatory Bowel Diseases - psychology
Male
Mother-Child Relations
Parents - psychology
Psychometrics
Reproducibility of Results
Surveys and Questionnaires
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Summary:Objective To present psychometric data on youth and parent versions of the Inflammatory Bowel Disease-Family Responsibility Questionnaire (IBD-FRQ), a measure of family involvement in IBD management. Methods Fifty-eight adolescents with inflammatory bowel disease (IBD), along with 55 mothers and 26 fathers completed the IBD-FRQ, a demographics questionnaire, and a measure of family involvement in decision making in non-IBD domains. Medical information was obtained via chart review. Results Support for the internal consistency of the IBD-FRQ was obtained. Evidence of validity was documented via moderate to high intercorrelations among reporters. Youth involvement increased with youth age, while maternal and paternal involvement decreased with youth age. Across all reporters, maternal involvement was higher than paternal involvement. Conclusions Preliminary analyses offer support for the measure's reliability and validity. The measure shows promise as a means of assessing family involvement in IBD condition management; however, further validation studies are needed.
ISSN:0146-8693
1465-735X
DOI:10.1093/jpepsy/jsp052