The information needs of well, longer-term survivors of breast cancer

Nine focus groups for well, longer-term survivors of breast cancer were held in Ontario, Canada. Prevalent themes identified through analysis of focus group transcripts fell into two broad categories, one reflecting the context within which women seek information and the other reflecting the content...

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Bibliographic Details
Published in:Patient education and counseling 1998-03, Vol.33 (3), p.245-255
Main Authors: Gray, Ross E, Fitch, Margaret, Greenberg, Marlene, Hampson, Ann, Doherty, Mary, Labrecque, Manon
Format: Article
Language:English
Subjects:
Adult
Aged
Aged, 80 and over
Breast cancer
Breast Neoplasms - psychology
Female
Focus Groups
Humans
Information
Middle Aged
Needs Assessment - statistics & numerical data
Nursing
Ontario
Patient Education as Topic
Survivors - psychology
Survivorship
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Summary:Nine focus groups for well, longer-term survivors of breast cancer were held in Ontario, Canada. Prevalent themes identified through analysis of focus group transcripts fell into two broad categories, one reflecting the context within which women seek information and the other reflecting the content of information desired and sought. Themes related to context included: the ongoing impact on women of their initial disease experience and continued uncertainty about possible recurrence; womens' lack of information and understanding about processes involved in developing medical knowledge; prevailing mistrust about the impact of cost curtailment policies; and, concerns related to how professional communication can aid or hinder the goal of obtaining information. Themes related to content issues included: follow-up protocols, tamoxifen, detecting signs of possible recurrence, prevention for daughters, neglected side effects of treatment, insurance, lifestyle, and unconventional therapies.
ISSN:0738-3991
1873-5134
DOI:10.1016/S0738-3991(98)00024-X