Genetic screening: a conceptual framework for programmes and policy-making

Objective: Policy-makers are faced with increasing pressures from a range of different stakeholders to introduce or expand genetic screening programmes. A shared understanding is therefore needed of the many factors influencing these complex policy decisions. Our aim was to develop a theoretical fra...

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Bibliographic Details
Published in:Journal of health services research & policy 2010-04, Vol.15 (2), p.90-97
Main Authors: Andermann, Anne, Blancquaert, Ingeborg, Déry, Véronique
Format: Article
Language:English
Subjects:
Conceptual development
Genetic screening
Genetic testing
Implementation
Informants
Literature reviews
Original research
Policy makers
Policy making
Public health
Respondents
Stakeholders
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Summary:Objective: Policy-makers are faced with increasing pressures from a range of different stakeholders to introduce or expand genetic screening programmes. A shared understanding is therefore needed of the many factors influencing these complex policy decisions. Our aim was to develop a theoretical framework that highlights the multiple components and influences involved in genetic screening and the policy-making process. Methods: As part of a larger research programme, existing policy frameworks relating to genetic screening were identified through a review of the literature. Major themes were identified and synthesized into an overarching framework, which was further refined through discussions with key informants. Results: The framework consists of three parts. The first part conceptualizes genetic screening as an integrated public health programme. The second part describes the policy-making process at each stage in the life cycle of the programme. The third part depicts the broader context within which policy-making occurs. Conclusion: This framework can support policy-makers by fostering a common understanding and facilitating dialogue with stakeholders. The framework has also been used as the conceptual foundation for the development of a more elaborate decision-guide.
ISSN:1355-8196
1758-1060
DOI:10.1258/jhsrp.2009.009084