'The everlasting trial of strength and patience': transitions in home care nursing as narrated by patients and family members

The aim of this study was to describe and interpret patients' and their family members' lived experiences of caring at home. Twelve tape-recorded narratives, with seven patients and five family members, were interpreted in accordance with a phenomenological-hermeneutic method inspired by R...

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Bibliographic Details
Published in:Journal of clinical nursing 2001-11, Vol.10 (6), p.813-819
Main Authors: EFRAIMSSON, Eva, HÖGLUND, Ingela, SANDMAN, Po
Format: Article
Language:English
Subjects:
Activities of Daily Living
Adaptation, Psychological
Aged
Anecdotes as Topic
Attitude to Health
Biological and medical sciences
Caregivers - psychology
Carers
Cost of Illness
Elderly people
Experiences
Families
Family - psychology
Female
Fundamental and applied biological sciences. Psychology
General aspects
Home care
Home Care Services - standards
Home Nursing - psychology
Humans
Illness and personality
Life Change Events
Life transitions
Male
Medical sciences
Middle Aged
Needs Assessment
Nursing
Nursing Methodology Research
Personality, behavior and health
Psychology and medicine
Psychology. Psychoanalysis. Psychiatry
Psychology. Psychophysiology
Public Health Nursing - standards
Quality of Life
Rural Health
Surveys and Questionnaires
Sweden
Time Factors
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Summary:The aim of this study was to describe and interpret patients' and their family members' lived experiences of caring at home. Twelve tape-recorded narratives, with seven patients and five family members, were interpreted in accordance with a phenomenological-hermeneutic method inspired by Ricoeur. The findings revealed life situations where natural caring was changed into patient-care-giver relations and the home became a public room. The patients had to deal with decreased abilities and the family members with adjusting to caring needs. The changes in the life situations were interpreted as long lasting and trying transitions. Implications for nursing and further research are proposed.
ISSN:0962-1067
1365-2702
DOI:10.1046/j.1365-2702.2001.00539.x