Burden among the Caregivers of Children with Intellectual Disability: Associations and Risk Factors

The study considers whether there is a pattern of demographic, caregiver and child characteristics that specifically predict burden among the primary caregivers of children with intellectual disability in a developing country, India. Thirty-one consecutive families with an intellectually disabled ch...

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Bibliographic Details
Published in:Journal of intellectual disabilities 2002-12, Vol.6 (4), p.337-350
Main Authors: Datta, Soumitra Shankar, Russell, Paul Swamidhas Sudhakar, Gopalakrishna, Seetha Cookemane
Format: Article
Language:English
Subjects:
Age Differences
Caregiver burden
Caregivers
Children & youth
Children with disabilities
Coping
Demography
Disorders and maladjustments
Educational sciences
Elementary Secondary Education
Expressive Language
Foreign Countries
India
Industrialized nations
Intellectual disabilities
Interpersonal Communication
Learning disabilities
Maladjustment
Mental disorders
Mental Retardation
Parent Child Relationship
Physical and mental disorders
Risk factors
Socioeconomic Influences
Stress Variables
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Summary:The study considers whether there is a pattern of demographic, caregiver and child characteristics that specifically predict burden among the primary caregivers of children with intellectual disability in a developing country, India. Thirty-one consecutive families with an intellectually disabled child were included. Caregivers and children were measured with a variety of instruments. The putative risk factors significant in the univariate analysis, namely income and expressed emotion, were entered stepwise into a logistic regression model to predict the level of burden. Expressed emotion towards the child with intellectual disability predicted a high level of burden among the caregivers. Age of child and income significant in the univariate analysis were also clinically associated with burden. These results are similar to those obtained in previous studies in industrialized countries and reinforce the importance of focused intervention to modify the family communication style.
ISSN:1469-0047
1744-6295
DOI:10.1177/146900470200600401