Multiple sclerosis and continence issues: an exploratory study

The study described in this article aimed to identify issues relating to incontinence and assess the impact of referral to a continence adviser on the lives of people with multiple sclerosis (MS). The study design used an in-depth, two-phase anonymous mail survey within a general community as nomina...

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Bibliographic Details
Published in:British journal of nursing (Mark Allen Publishing) 2005-04, Vol.14 (8), p.439-446
Main Authors: Wollin, Judy, Bennie, Mary, Leech, Christine, Windsor, Carol, Spencer, Nancy
Format: Article
Language:English
Subjects:
Activities of Daily Living
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Attitude to Health
Australia
Continence
Cost of Illness
Fecal Incontinence - etiology
Fecal Incontinence - nursing
Fecal Incontinence - psychology
Female
Health Knowledge, Attitudes, Practice
Health Services Needs and Demand
Humans
Incontinence
Mail surveys
Male
Middle Aged
Multiple sclerosis
Multiple Sclerosis - complications
Nurse Clinicians - standards
Nursing
Nursing Methodology Research
Patient Education as Topic
Quality of Life
Queensland
Referral and Consultation
Shame
Surveys and Questionnaires
Urinary Incontinence - etiology
Urinary Incontinence - nursing
Urinary Incontinence - psychology
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Summary:The study described in this article aimed to identify issues relating to incontinence and assess the impact of referral to a continence adviser on the lives of people with multiple sclerosis (MS). The study design used an in-depth, two-phase anonymous mail survey within a general community as nominated by the participants. Fifty-six people participated in phase 1 and eleven people completed phase 2. The results indicated that incontinence is a problem for the vast majority of participants — people with MS. One-third of the eligible participants took up the option of a consultation, assessment and treatment from a continence nurse. Reasons for not taking up the visit from the continence nurse included ‘managing OK’, ‘didn’t think it would help’, ‘embarrassed’ and ‘too busy’. Increasing awareness of urinary incontinence in the community is important and education needs to focus on at-risk groups in presenting the range of options available to assist people experiencing incontinence.
ISSN:0966-0461
2052-2819
DOI:10.12968/bjon.2005.14.8.17926