Assessment of agreement between parents and children on health-related quality of life in children with cystic fibrosis

In the past 15 years, health-related quality of life (HRQOL) has become of major interest in health psychology, and HRQOL measures have enabled healthcare workers to obtain a better understanding of the impact of the illness and its treatment on patients' lives. The CFQ-parent version is a 43-i...

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Bibliographic Details
Published in:Child : care, health & development health & development, 2006-01, Vol.32 (1), p.1-7
Main Authors: Havermans, T., Vreys, M., Proesmans, M., De Boeck, C.
Format: Article
Language:English
Subjects:
Adolescent
Age Factors
Assessment
Child
Children
Children & youth
Cost of Illness
Cystic fibrosis
Cystic Fibrosis - complications
Cystic Fibrosis - psychology
Cystic Fibrosis - rehabilitation
Female
Health Status Indicators
Hospitals
Humans
Male
parent-child agreement
Parent-Child relationships
Parents
Parents & parenting
Patients
Psychometrics
Quality of Life
Raw Scores
Reliability
Reproducibility of Results
Resistance (Psychology)
Self Concept
Sex Factors
Surveys and Questionnaires
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Summary:In the past 15 years, health-related quality of life (HRQOL) has become of major interest in health psychology, and HRQOL measures have enabled healthcare workers to obtain a better understanding of the impact of the illness and its treatment on patients' lives. The CFQ-parent version is a 43-item self-report measure that assesses four broad domains: physical symptoms (nine items), emotional functioning (five items), vitality (five items) and school functioning (three items); and seven CF-specific domains: body image (three items), eating disturbances (three items), treatment burden (two items), respiratory symptoms (six items), digestive symptoms (three items) and weight (one item), along with an overall health perception scale (three items). Modi, A. C. & Quittner, A. L. (2003) Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis.
ISSN:0305-1862
1365-2214
DOI:10.1111/j.1365-2214.2006.00564.x