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A controlled national survey in France of health-related challenges for persons with Down syndrome
Despite recent research on the impact of disability on function, little information is available to evaluate the need for daily support in persons with Down syndrome. The aim of this study was to evaluate the prevalence and relative degree of difficulty experienced by this population in routine hygi...
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| Published in: | Nursing outlook 2006-11, Vol.54 (6), p.345-352 |
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| Main Authors: | , , , , |
| Format: | Article |
| Language: | English |
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| cites | cdi_FETCH-LOGICAL-c395t-cd4db6eedb542810745c97476beea71a29ab6365a9865883b0a17b1572b301493 |
| container_end_page | 352 |
| container_issue | 6 |
| container_start_page | 345 |
| container_title | Nursing outlook |
| container_volume | 54 |
| creator | Faulks, Denise Collado, Valérie de Freminville, Bénédicte Newton, J. Tim Hennequin, Martine |
| description | Despite recent research on the impact of disability on function, little information is available to evaluate the need for daily support in persons with Down syndrome. The aim of this study was to evaluate the prevalence and relative degree of difficulty experienced by this population in routine hygiene and health care when compared to their siblings. A proxy French language questionnaire was used for this cross-sectional survey of 199 persons with Down syndrome and 153 siblings (mean age 12.3 years, range ≤ 1-48). Individuals in the study group had significantly more difficulty performing all activities related to routine hygiene and health care, and were 2–22 times more likely to need help than the control group. Certain acts of routine health care were performed more regularly by those in the study group (6/12 items), and specialist medical and paramedical visits were more regular (OR = 7–44). Increased difficulty and need for help in performing acts of basic self-care may reduce autonomy and social integration for persons with Down syndrome. Recommendations are made in relation to the training of caregivers and health professionals. |
| doi_str_mv | 10.1016/j.outlook.2006.09.004 |
| format | article |
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Certain acts of routine health care were performed more regularly by those in the study group (6/12 items), and specialist medical and paramedical visits were more regular (OR = 7–44). Increased difficulty and need for help in performing acts of basic self-care may reduce autonomy and social integration for persons with Down syndrome. 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Tim</creatorcontrib><creatorcontrib>Hennequin, Martine</creatorcontrib><title>A controlled national survey in France of health-related challenges for persons with Down syndrome</title><title>Nursing outlook</title><addtitle>Nurs Outlook</addtitle><description>Despite recent research on the impact of disability on function, little information is available to evaluate the need for daily support in persons with Down syndrome. The aim of this study was to evaluate the prevalence and relative degree of difficulty experienced by this population in routine hygiene and health care when compared to their siblings. A proxy French language questionnaire was used for this cross-sectional survey of 199 persons with Down syndrome and 153 siblings (mean age 12.3 years, range ≤ 1-48). Individuals in the study group had significantly more difficulty performing all activities related to routine hygiene and health care, and were 2–22 times more likely to need help than the control group. Certain acts of routine health care were performed more regularly by those in the study group (6/12 items), and specialist medical and paramedical visits were more regular (OR = 7–44). Increased difficulty and need for help in performing acts of basic self-care may reduce autonomy and social integration for persons with Down syndrome. 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Individuals in the study group had significantly more difficulty performing all activities related to routine hygiene and health care, and were 2–22 times more likely to need help than the control group. Certain acts of routine health care were performed more regularly by those in the study group (6/12 items), and specialist medical and paramedical visits were more regular (OR = 7–44). Increased difficulty and need for help in performing acts of basic self-care may reduce autonomy and social integration for persons with Down syndrome. Recommendations are made in relation to the training of caregivers and health professionals.</abstract><cop>United States</cop><pub>Mosby, Inc</pub><pmid>17142153</pmid><doi>10.1016/j.outlook.2006.09.004</doi><tpages>8</tpages></addata></record> |
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| ispartof | Nursing outlook, 2006-11, Vol.54 (6), p.345-352 |
| issn | 0029-6554 1528-3968 |
| language | eng |
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| source | Elsevier |
| subjects | Activities of Daily Living Adolescent Adult Case-Control Studies Child Child, Preschool Cross-Sectional Studies Disabled Persons - rehabilitation Disabled Persons - statistics & numerical data Down Syndrome - epidemiology Down Syndrome - therapy Female France - epidemiology Health Care Surveys Health Services - utilization Health Status Health Surveys Humans Hygiene Male Middle Aged Needs Assessment - organization & administration Nurse's Role Nursing Prevalence Self Care Surveys and Questionnaires |
| title | A controlled national survey in France of health-related challenges for persons with Down syndrome |
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