Guidelines for Adolescent Health Research : A Position Paper of the Society for Adolescent Medicine

Their ambiguous legal and ethical status has become a barrier to adolescents' appropriate involvement in research from which they may benefit and which is needed to improve adolescent health care and to inform health policy. Involvement of adolescents in research should be based on a scientific...

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Bibliographic Details
Published in:Journal of adolescent health 1995-11, Vol.17 (5), p.270-276
Main Authors: Santelli, John S., Rosenfeld, Walter D., DuRant, Robert H., Dubler, Nancy, Morreale, Madlyn, English, Abigail, Rogers, Audrey Smith
Format: Article
Language:English
Subjects:
Adolescent
Adolescent Medicine - standards
Adolescents
Behavioral Research
Bioethics
Biological and medical sciences
Government Regulation
Guidelines
Health
Health research
Humans
Informed Consent
Medical sciences
Parental Consent
Patient Advocacy
Practice Guidelines as Topic
Prevention and actions
Public health. Hygiene
Public health. Hygiene-occupational medicine
Research - legislation & jurisprudence
Research - standards
Research protection
Risk Assessment
Societies, Medical
Specific populations (family, woman, child, elderly...)
United States
USA
Young people
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Summary:Their ambiguous legal and ethical status has become a barrier to adolescents' appropriate involvement in research from which they may benefit and which is needed to improve adolescent health care and to inform health policy. Involvement of adolescents in research should be based on a scientific and empathetic understanding of their developing capabilities and a careful assessment of risks and benefits. The important role of parents and communities as protectors of adolescents should be respected and enhanced as we acknowledge and respect developing adolescent autonomy. These guidelines provide a framework to interpret the federal regulations for protection of human subjects in light of the unique legal, ethical, developmental, contextual, and racial issues that affect adolescents. The guidelines are designed to protect individual adolescent research subjects and to facilitate important youth research that would promote the health of adolescents.
ISSN:1054-139X
1879-1972
DOI:10.1016/1054-139X(95)00181-Q