Framework for a proactive parent support group: The syracuse cystic fibrosis model

Many support groups are organized and run according to goals and by-laws set by facilitators. This article introduces a model in which all goals and bylaws are created by the parents based on their group's specific needs. It also describes a “proactive” approach in which the group members ident...

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Bibliographic Details
Published in:Journal of pediatric health care 1996-11, Vol.10 (6), p.264-271
Main Authors: Matloff, Ellen T, Zimmerman, Susan J
Format: Article
Language:English
Subjects:
Adult
Child
Cystic Fibrosis - nursing
Group Processes
Humans
Nursing
Parents - education
Parents - psychology
Self-Help Groups - organization & administration
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Summary:Many support groups are organized and run according to goals and by-laws set by facilitators. This article introduces a model in which all goals and bylaws are created by the parents based on their group's specific needs. It also describes a “proactive” approach in which the group members identify projects or problems in their community and collectively form a plan in an attempt to improve these situations. This model is based on the real-life experience of a cystic fibrosis parent support group in Syracuse, New York. Lessons learned from this model can be applied to other parent support groups.
ISSN:0891-5245
1532-656X
DOI:10.1016/S0891-5245(96)90052-8