Caregivers of persons with a brain tumor: a conceptual model

Researchers have documented negative physical and emotional consequences for both family caregivers of persons with cancer as well as caregivers of persons with a neurologic disorder. However, there is a unique subset of caregivers who must provide care for someone who may suffer from both a short,...

Full description

Saved in:
Bibliographic Details
Published in:Nursing inquiry 2004-03, Vol.11 (1), p.43-53
Main Authors: Sherwood, Paula, Given, Barbara, Given, Charles, Schiffman, Rachel, Murman, Daniel, Lovely, Mary
Format: Article
Language:English
Subjects:
Activities of Daily Living
Adaptation, Psychological
Attitude to Health
Brain Neoplasms - nursing
brain tumor
Brain tumours
caregiver
Caregivers - psychology
Carers
conceptual framework
Conceptual models
coping
Coping strategies
Cost of Illness
Family - psychology
Grief
Health Resources
Health Services Needs and Demand
Home Nursing - psychology
Humans
Models, Psychological
Nurse's Role
Nursing
Nursing Assessment
Nursing Methodology Research
Patients
Risk Factors
Social Support
Stress
Stress, Psychological - etiology
Stress, Psychological - prevention & control
Stress, Psychological - psychology
Workload
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Researchers have documented negative physical and emotional consequences for both family caregivers of persons with cancer as well as caregivers of persons with a neurologic disorder. However, there is a unique subset of caregivers who must provide care for someone who may suffer from both a short, terminal trajectory of disease, as well as neurological and neuropsychiatric sequelae — the caregiver of a person with a primary malignant brain tumor. The purpose of this article was to describe a conceptual framework for providing care for a person with a primary malignant brain tumor. The demands of this particular care situation are described, as well as potential resources available to the caregiver to meet those demands. Finally, the stress response that results from the balance between care demands and caregiver resources is illustrated. Development of a conceptual framework for this caregiving population is the first step in assisting nurses to identify factors that place caregivers of persons with a primary malignant brain tumor at risk for negative consequences, and to design interventions to improve caregiver health.
ISSN:1320-7881
1440-1800
DOI:10.1111/j.1440-1800.2004.00200.x