Antenatal diagnosis of diaphragmatic hernia: parents’ emotional and cognitive reactions

• Published in: Journal of pediatric surgery 2004-02, Vol.39 (2), p.174-178
• Main Authors: Aite, Lucia, Trucchi, Alessandro, Nahom, Antonella, Casaccia, Germana, Zaccara, Antonio, Giorlandino, Claudio, Bagolan, Pietro
• Format: Article
• Language: English
• Subjects: Adult; Cognition; Communication; Congenital diaphragmatic hernia; Educational Status; Emotions; Fear; Female; Fetal Diseases - diagnosis; Fetal Diseases - embryology; Fetal Diseases - psychology; Hernia, Diaphragmatic - diagnosis; Hernia, Diaphragmatic - embryology; Hernia, Diaphragmatic - psychology; Humans; Male; parental anxiety; Parents - psychology; Patient Education as Topic; Physician-Patient Relations; Pregnancy; prenatal diagnosis; Prenatal Diagnosis - psychology; Surveys and Questionnaires
• ISSN: 0022-3468; 1531-5037
• DOI: 10.1016/j.jpedsurg.2003.10.010

The aim of this study was to assess parent’s emotional and cognitive reactions to the prenatal diagnosis of diaphragmatic hernia in their prospective children. A survey was conducted by means of a questionnaire. In the period ranging from 1997 to 2002, 40 couples in whom an established diagnosis of diaphragmatic hernia was made in their fetus were seen for prenatal consultation at a tertiary referral center. Overall response rate was 93% (37 couples). Mean period since diagnosis for compilation of the questionnaire was 2 weeks. Mean gestational age at diagnosis was 25 weeks (range, 16 to 35 weeks). All parents lacked prediagnostic knowledge of diaphragmatic hernia and consider a single consultation with the paediatric surgeon inadequate to have a clear understanding of the anomaly. Only 1 mother and 1 father reported they understood all the information given by the surgeon. The most frequent (75%) feeling during and after the consultation was fear. Most parents (70%) referred to the intense emotions as the factor that made it difficult to follow the surgeon’s explanations as well as to ask questions. Because of the incompatibility of emotional distress and optimum learning, impairment of early comprehension of information about diaphragmatic hernia is unavoidable. Therefore, we believe that follow-up antenatal consultations and provision of written and visual illustration are extremely important to facilitate informed choices.