Cluster Randomized-Controlled Trial of Interventions to Improve Health for Adults with Intellectual Disability Who Live in Private Dwellings

• Published in: Journal of applied research in intellectual disabilities 2010-07, Vol.23 (4), p.303-311
• Main Authors: Lennox, Nicholas, Bain, Chris, Rey-Conde, Therese, Taylor, Miriam, Boyle, Frances M., Purdie, David M., Ware, Robert S.
• Format: Article
• Language: English
• Subjects: Access to Health Care; Adults; communication; Communication Skills; Diaries; Disease prevention; Evidence-based medicine; general practitioners; health advocacy; health assessment; Health Promotion; Intellectual disabilities; intellectual disability; Intervention; Mental Retardation; Physicians; Prevention; Recall (Psychology); Screening Tests; Testing
• ISSN: 1360-2322; 1468-3148
• DOI: 10.1111/j.1468-3148.2009.00533.x

Background  People with intellectual disability who live in the community often have poor health and healthcare, partly as a consequence of poor communication, recall difficulties and incomplete patient health information. Materials and Methods  A cluster randomized‐controlled trial with 2 × 2 factorial design was conducted with adults with intellectual disability to investigate two interventions to enhance interactions among adults with intellectual disability, their care providers and general practitioners (GPs). The interventions were the Comprehensive Health Assessment Program (CHAP), a one‐off health review tool, and the Ask health diary, designed for ongoing use. Follow‐up was for 12 months post‐intervention. Evidence of health promotion, disease prevention and case‐finding activities were extracted from GPs clinical records. Results  Increased health promotion, disease prevention and case‐finding activity were found in the intervention groups using the CHAP. It had a positive impact on Pneumococcus vaccination (OR 7.4; 95% CI: 1.5–37.1), hearing testing (4.5; 1.9–10.7), Hepatitis A vaccinations (5.4; 1.8–16.3), vision testing (3.4; 1.4–8.3), and weight measurement (3.1; 1.5–6.4). There were no strong changes in the measured outcomes in the group who used the Ask health diary alone. Conclusions  The use of the CHAP increased health promotion, disease prevention and case‐finding activity in adults with intellectual disability living in the community and confirms the previously demonstrated benefits of the CHAP can be extended to less formal residential settings. The use of the Ask health diary did not improve the measured healthcare activity, at least in the short term, although it may contribute in other ways towards better health.