Parenting aggravation and autism spectrum disorders: 2007 National Survey of Children’s Health

• Published in: Disability and health journal 2011-07, Vol.4 (3), p.143-152
• Main Authors: Schieve, Laura A., Ph.D, Boulet, Sheree L., Dr.PH, Kogan, Michael D., Ph.D, Yeargin-Allsopp, Marshalyn, M.D, Boyle, Coleen A., Ph.D, Visser, Susanna N., M.S, Blumberg, Stephen J., Ph.D, Rice, Catherine, Ph.D
• Format: Article
• Language: English
• Subjects: Adolescent; Age Factors; Autistic disorder; Child; Child Development Disorders, Pervasive; Child, Preschool; Delivery of Health Care; Developmental Disabilities; Emotions; Health Surveys; Humans; Insurance, Health; Internal Medicine; Male; Parent-child relations; Parenting - psychology; Parents - psychology; Patient-Centered Care; Prevalence; Psychological; Risk Factors; Severity of Illness Index; Social Support; Stress; Stress, Psychological - epidemiology
• ISSN: 1936-6574; 1876-7583
• DOI: 10.1016/j.dhjo.2010.09.002

Abstract Background Studies suggest autism spectrum disorders (ASDs) are associated with high parenting stress and aggravation. Research on specific risk factors is needed. Objective/Hypotheses To assess aggravation level among parents of children with and without ASDs. Methods The sample of 73,030 children aged 4 to 17 years in the 2007 National Survey of Children’s Health and their parent respondents were divided into mutually exclusive groups based on child ASD status and other special health care needs. Adjusted prevalence ratios (aPR) for associations between a high Aggravation in Parenting scale score and various risk factors were computed from multivariable models. Results High-aggravation percentages were comparable for parents of children with a current ASD (36.6%), ASD reported previously but not currently (35.2%), and another (non-ASD) developmental problem (31.2%) but were significantly lower for parents of children with other special health care needs (6.5%) and no special health care needs (5.1%). Within the current-ASD group, high aggravation was associated with young child age (aPR = 1.8 [1.2-2.6]), lack of health insurance (aPR = 1.5 [1.0-2.4]), lack of a medical home (aPR = 2.2 [1.4-3.5]), recent child mental health treatment (aPR = 2.1 [1.5-3.0]), lack of parenting emotional support (aPR = 1.5 [1.1-2.1]), and ASD severity (aPR = 1.4 [1.0-1.6]). Some of these same factors were associated with aggravation in the non-ASD groups. However, the medical home finding was specific to the ASD groups. Conclusions Parenting a child with ASD is associated with high aggravation; however, there is variability within health care and social support subgroups. Strategies to strengthen medical home components for children with ASDs should be considered.