The Danish Register of Congenital Heart Disease

Introduction: Congenital heart defects (CHD) constitute the largest group of congenital defects with a prevalence at birth of 5—11 per 1000 live births, and the population of adults with CHD is increasing. However, few population-based long-term outcome data exist. Content: The Danish Register of Co...

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Bibliographic Details
Published in:Scandinavian journal of public health 2011-07, Vol.39 (7_suppl), p.50-53
Main Authors: Olsen, Morten, Videbæk, Jørgen, Paaske Johnsen, Søren
Format: Article
Language:English
Subjects:
Adult
Biomedical Research
Child
Congenital deformities
Denmark
Denmark - epidemiology
Follow-Up Studies
Heart Defects, Congenital - classification
Heart Defects, Congenital - diagnosis
Heart Defects, Congenital - epidemiology
Heart disease
Humans
Prognosis
Public health
Registries - standards
Statistical data
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Summary:Introduction: Congenital heart defects (CHD) constitute the largest group of congenital defects with a prevalence at birth of 5—11 per 1000 live births, and the population of adults with CHD is increasing. However, few population-based long-term outcome data exist. Content: The Danish Register of Congenital Heart Disease holds data on patients diagnosed with CHD since 1963 and patients below 25 years of age with other types of heart disease. Validity and coverage: Overall and defect specific validation is ongoing. Conclusion: Together with other Danish registers, the Danish Register of Congenital Heart Disease provides extensive research possibilities.
ISSN:1403-4948
1651-1905
DOI:10.1177/1403494811399169