Development of a psychological well-being scale for family caregivers in palliative care

• Published in: East Asian archives of psychiatry 2010-09, Vol.20 (3), p.109-115
• Main Authors: Wu, K K, Cho, V W, Li, A, Chen, W T, Tse, D M
• Format: Article
• Language: English
• Subjects: Anxiety; Cancer; Caregivers; Family relationships; Hospitals; Mental depression; Palliative care; Palliative treatment; Patients; Psychological aspects; Psychopathology; Quantitative psychology; Social aspects; Social support; Stress; Well being
• ISSN: 2078-9947; 2224-7041

Objective: A Psychological Well-being Scale for Caregivers (PWS-C) was developed to screen for psychological distress among family caregivers in a Palliative Care Unit for patients with advanced cancer. Methods: To study the psychometric properties of the 11-item PWS-C which consisted of 5 subscales; 132 family caregivers completed the PWS-C, of whom 70 also answered the Hospital Anxiety and Depression Scale (HADS) questionnaire. Results of 15 caregivers who had received psychological intervention and completed the PWS-C before and after treatment were compared. esults: The internal consistency and test-retest reliability of the scale were found to be satisfactory. A 4-factor structure was identified. Items for Life Meaning and Social Support subscales were accounted for by 1 factor. The subscales of Emotional Distress, Caregiving Inadequacy, and Hospital Care were accounted for by 3 other factors. The PWS-C subscale scores were moderately correlated with HADS scores. Significant changes in the subscales of Social Support and Life Meaning of the PWS-C were identified in pre-post treatment comparisons, which indicated the potential utility of the scale as an outcome measure. Conclusions: The PWS-C could be a reliable and valid tool useful for screening and measuring the outcome of psychological interventions for psychological well-being / distress reduction, for caregivers of patients receiving palliative care.