Managing stigma in adolescent HIV: silence, secrets and sanctioned spaces

HIV is conceived as a disease that combines stigma elements of perceived contagion and socially undesirable behaviours. Drawing on in-depth interviews with professional adolescent service providers from Australia, Canada, the UK and the USA, this paper explores HIV stigma and stigma management in th...

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Bibliographic Details
Published in:Culture, health & sexuality health & sexuality, 2011-03, Vol.13 (3), p.267-281
Main Authors: Fielden, Sarah J., Chapman, Gwenneth E., Cadell, Susan
Format: Article
Language:English
Subjects:
Adolescent
Adolescents
AIDS
Australia
Canada
Child health services
Child psychology
Children
Diseases
Everyday life
Female
HIV
HIV Infections - psychology
HIV/AIDS
Human immunodeficiency virus
Humans
Interviews
Interviews as Topic
Male
North America
Parents
Prejudice
Sexual behavior
Social stigma
Social support
Sociology
Sociology of health and medicine
Stigma
Stigmatization
Studies
Teenagers
Truth Disclosure
U.S.A
United Kingdom
young people
Youth
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Summary:HIV is conceived as a disease that combines stigma elements of perceived contagion and socially undesirable behaviours. Drawing on in-depth interviews with professional adolescent service providers from Australia, Canada, the UK and the USA, this paper explores HIV stigma and stigma management in the lives of HIV-positive young people. Findings elucidate how additional layers of stigma relating to 'adolescent rights' and 'embodied innocence' are added to HIV stigma as it is more usually conceived. This study suggests that managing this stigma entails managing silence in the context of the social worlds of the young person, the family and the service provider. Silence emerged as a key theme in the participant narratives and was embedded in the descriptions of young people's lived experiences. Crucially, silence is a product of oppression and inequity but is also a tool for resistance. Silence defends secrets and exists in the spaces, both physical and social, that are created for them in order to manage the stigma in young people's lives. Silences associated with HIV therefore need to be exposed if we are to better understand what HIV truly means to seropositive young people and how 'silences' may minimise or exacerbate their experience of HIV stigma inside and outside the context of programmes.
ISSN:1369-1058
1464-5351
DOI:10.1080/13691058.2010.525665