Longitudinal Self-Management and/or Transition Readiness per the TR x ANSITION Index among Patients with Chronic Conditions in Pediatric or Adult Care Settings

To evaluate the roles of key individual, family, and illness characteristics on the levels of and gains in longitudinal healthcare transition (HCT) readiness in the pediatric setting and/or self-management skills (SMS) in the adult-focused setting, we used a large dataset with longitudinal measureme...

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Bibliographic Details
Published in:The Journal of pediatrics 2018-12, Vol.203, p.361
Main Authors: Zhong, Yi, Gilleskie, Donna B, van Tilburg, Miranda A L, Hooper, Stephen R, Rak, Eniko, Javalkar, Karina, Nazareth, Meaghan, Pitts, Brian, Ndugga, Maggwa, Jain, Nina, Hart, Laura, Bhansali, Suneet, Richards, Jordan, Detwiler, Randal K, True, Karin, de Pomposo, Alexandre S F, Ferris, Maria E
Format: Article
Language:English
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Summary:To evaluate the roles of key individual, family, and illness characteristics on the levels of and gains in longitudinal healthcare transition (HCT) readiness in the pediatric setting and/or self-management skills (SMS) in the adult-focused setting, we used a large dataset with longitudinal measurements from 2006 to 2015. This longitudinal observational study followed 566 adolescents and young adults with chronic conditions at University of North Carolina Hospitals. TR ANSITION Index measurements, which represent learning outcomes rather than health outcomes, were collected multiple times per patient and analyzed using a novel application of an education-based approach. Levels of and gains in HCT/SMS scores increased with age (P 
ISSN:1097-6833
DOI:10.1016/j.jpeds.2018.06.052