Lessons learned from a mobile technology-based intervention informed by behavioral economics to improve ART adherence among youth in Uganda

Evidence suggests that simple text messaging interventions may not suffice to improve ART adherence among youth in low-resource settings. To address this shortcoming, we developed an intervention that shared weekly real-time adherence feedback to youth in Uganda using short message services (SMS), b...

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Bibliographic Details
Published in:AIDS care 2020-05, Vol.32 (5), p.616-622
Main Authors: MacCarthy, Sarah, Mendoza-Graf, Alexandra, Saya, Uzaib, Samba, Clare, Birungi, Josephine, Okoboi, Stephen, Linnemayr, Sebastian
Format: Article
Language:English
Subjects:
Adherence
Adolescent
Antiretroviral drugs
Antiretroviral therapy
Antiretroviral Therapy, Highly Active - methods
Behavioral economics
Cell Phone
Economics, Behavioral
Electricity
Feedback
Female
Focus Groups
HIV
HIV Infections - drug therapy
HIV Infections - psychology
Humans
Impressions
Intervention
Male
Medication Adherence - psychology
Medication Adherence - statistics & numerical data
Messages
Mobile technology
Patient compliance
Portable computers
Program Evaluation
Reminders
Short message service
Slang
Stigma
Technology
text message
Text Messaging
Uganda
Young Adult
Youth
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Summary:Evidence suggests that simple text messaging interventions may not suffice to improve ART adherence among youth in low-resource settings. To address this shortcoming, we developed an intervention that shared weekly real-time adherence feedback to youth in Uganda using short message services (SMS), based on information tracked by an electronic device (Wisepill). We present results from 7 formative and 6 exit focus groups (FGs) in Mulago and Entebbe, Uganda with youth ages 15-24, providers, and Community Advisory Board members. Participants consistently conveyed positive impressions of Wisepill, noting that it helped store their medications, facilitated travel, served as a reminder, and motivated adherence. Participants raised phone-related issues before the study; most were addressed but some remained (e.g., limited network access, electricity for powering phones). Further, they highlighted the importance of carefully crafting text messages (e.g., use slang rather than potentially stigmatizing words) and viewed personalizing messages favorably but were divided on the desirability of including their name in study-related texts. Exit FGs confirmed that sharing group adherence levels with participants tapped into the competitive spirit common among youth. Our results suggest future mobile technology-based interventions can be improved by providing messages that go beyond simple reminders to provide individual and group-level adherence feedback.
ISSN:0954-0121
1360-0451
DOI:10.1080/09540121.2019.1622630