EVALUATING EDUCATIONAL MATERIAL FROM THE PERSPECTIVE OF INFORMAL CAREGIVERS OF CHILDREN WITH HYDROCEPHALY: A QUALITATIVE STUDY

We evaluated whether a previously developed educational material by health professionals about hydrocephalus and its treatment corresponded with the daily life of caregivers of children with. We conducted a qualitative study at a university hospital in Brazil, interviewing 32 informal caregivers of...

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Bibliographic Details
Published in:World neurosurgery 2020-04
Main Authors: de Aro Jorge Tavares, Paloma, Baravieraa, Tamires, Hamamoto Filho, Pedro Tadao, Garcia de Avila, Marla Andréia
Format: Article
Language:English
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Summary:We evaluated whether a previously developed educational material by health professionals about hydrocephalus and its treatment corresponded with the daily life of caregivers of children with. We conducted a qualitative study at a university hospital in Brazil, interviewing 32 informal caregivers of children with hydrocephalus. The methodological framework of Bardin's content analysis was used to analyze the data. The educational material adequately represented caregivers' experience regarding daily life, surgery experiences, and care needed by children with hydrocephalus. Additionally, the educational material may help to identify the signs and symptoms of ventriculoperioteneal shunt. However, the material did not address the limitations of children disabled with hydrocephalus in daily life. From the perspective of informal caregivers of children with hydrocephalus, the educational material corresponded with families' daily life and surgical experience and may be used by health professionals to reinforce important points for the care for children with hydrocephalus, facilitating the health education process.
ISSN:1878-8769
DOI:10.1016/j.wneu.2020.04.004