The feasibility and acceptability of mobile ecological momentary assessment to evaluate sleep, family functioning, and affect in patients with pediatric craniopharyngioma

We aimed to assess the feasibility and acceptability of mobile ecological momentary assessment (mEMA) for youth with craniopharyngioma and evaluate daily associations among family functioning, affect, and sleep difficulties. Youth completed two mEMA diaries per day for one week. Thirty-nine youth wh...

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Bibliographic Details
Published in:Journal of psychosocial oncology 2024, Vol.42 (2), p.159-174
Main Authors: Al Ghriwati, Nour, Winter, Marcia, Semko, Joshua, Merchant, Thomas E., Crabtree, Valerie McLaughlin
Format: Article
Language:English
Subjects:
Adolescent
Adolescents
affect
Autobiographical literature
cancer
Child
Craniopharyngioma - therapy
Ecological Momentary Assessment
Emotions
Evaluation
Families & family life
family
Feasibility Studies
Humans
Pediatrics
Pituitary Neoplasms - therapy
psychology
Research design
Sleep
Sleep Wake Disorders
Surgery
Youth
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Summary:We aimed to assess the feasibility and acceptability of mobile ecological momentary assessment (mEMA) for youth with craniopharyngioma and evaluate daily associations among family functioning, affect, and sleep difficulties. Youth completed two mEMA diaries per day for one week. Thirty-nine youth who underwent surgery and proton radiotherapy (when indicated) for craniopharyngioma. Descriptive statistics and multi-level modeling were used to examine feasibility and acceptability of mEMA and daily associations among family functioning, affect, and sleep. Youth reported satisfaction and minimal burden from completing daily mEMA diaries. Poorer family functioning was not related to lower sleep efficiency. mEMA is an acceptable and feasible method for evaluating sleep and related variables in children and adolescents with craniopharyngioma. Results highlight the utility of gathering mEMA data in youth at elevated risk for sleep difficulties as a function of their illness/treatment.
ISSN:0734-7332
1540-7586
DOI:10.1080/07347332.2023.2231412