Validation of the Turkish Version of the Sarcoidosis Health Questionnaire: A cross-sectional study

• Published in: Sarcoidosis, vasculitis, and diffuse lung diseases vasculitis, and diffuse lung diseases, 2023-03, Vol.40 (1), p.e2023002-e2023002
• Main Authors: Kavas, Murat, Kaymaz, Serdar, Aydoğan Eroglu, Selma, Karasu, Ugur, Cobankara, Veli, Boga, Sibel
• Format: Article
• Language: English
• Subjects: Original
• ISSN: 1124-0490; 2532-179X
• DOI: 10.36141/svdld.v40i1.13617

 Sarcoidosis, a multisystemic granulomatous disease, generally results in a lower quality of life (QoL) because of its unexpected course and diverse clinical symptoms. The Sarcoidosis Health Questionnaire (SHQ) evaluates the QoL for people with sarcoidosis in terms of their health. This study set out to validate the SHQ in a group of Turkish sarcoidosis patients.  The study included a total of 146 adult sarcoidosis patients (63 male and 83 female; mean age, 44±3.6 years; range, 27-63 years) between May 2019 and September 2021. Preparation, forward translation, reconciliation, back translation/back translation review, harmonization, finalization, and proofreading comprised the steps of the testing procedure for translation and cultural adaptation. The participants filled out three questionnaires, including the SHQ, 36-Item Short Form (SF-36) Health Survey, and King's Sarcoidosis Questionnaire (KSQ), and underwent pulmonary function tests (PFTs).  Of the patients, 95% had lung involvement, with a mean number of 1.3 organs involved. Each SHQ component displayed a moderate to high internal consistency, ranging from 0.806 to 0.844. The whole scale's Cronbach's alpha value was 0.781. The SHQ total score significantly correlated with physical component summary (p< 0.001, r=0.360) and mental component summary (p