Evolution of Quality of Life and Treatment Adherence after One Year of Intermittent Bladder Catheterisation in Functional Urology Unit Patients

• Published in: Journal of clinical medicine 2023-04, Vol.12 (8), p.2928
• Main Authors: Fernandez-Lasquetty Blanc, Blanca, Hernández Martínez, Antonio, Lorenzo García, Carlos, Baixauli Puig, Montserrat, Estudillo González, Francisco, Martin Bermejo, Maria Victoria, Ortega Checa, Maria Angustias, Alcaraz Zomeño, Elena, Torres Bacete, Arancha, Ferrández Franco, Guillermina, Benito Santos, Begoña, Fernández Llorente, Guadalupe, Guerrero Andrádes, Maria Carmen, Rodríguez Diaz, Monica, Louis Lauture, Mario Pierre, Jiménez Mayorga, Isabel, Serrano-Abiétar, Rosario, Garrido Mora, Maria Asunción, Barcia Barrera, Francisco, Asensio Malo, Gemma, Morcillo Marín, Montserrat, Lluesma Martinez, Vicenta, Valero Escribá, Maria Luisa, Tendero Ruiz, Silvia, Romay Cea, Rosa Ana, Marín Valero, Mercedes, Rodríguez-Almagro, Julián
• Format: Article
• Language: English
• Subjects: Anxiety; Bladder; Clinical medicine; Data collection; Design; Health aspects; Information sources; Intubation; Methods; Patient compliance; Patient outcomes; Patients; Personal information; Quality of life; Questionnaires; Sociodemographics; Urinary catheterization; Urinary retention; Urology; Variables
• ISSN: 2077-0383; 2077-0383
• DOI: 10.3390/jcm12082928

To determine patient difficulties and concerns when performing IBC (Intermittent Bladder Catheterisation), as well as the evolution of adherence, quality of life, and emotional state of patients one year after starting IBC. A prospective, observational, multicentre study conducted in 20 Spanish hospitals with a one-year follow-up. Data sources were patient records and the King's Health Questionnaire on quality of life, the Mini-Mental State Examination (MMSE), and the Hospital Anxiety and Depression Scale (HADS). Perceived adherence was measured using the ICAS (Intermittent Catheterization Adherence Scale) and perceived difficulties with IBC were assessed using the ICDQ (Intermittent Catheterization Difficulty Questionnaire). For data analysis, descriptive and bivariate statistics were performed for paired data at three points in time (T1: one month, T2: three months, T3: one year). A total of 134 subjects initially participated in the study (T0), becoming 104 subjects at T1, 91 at T2, and 88 at T3, with a mean age of 39 years (standard deviation = 22.16 years). Actual IBC adherence ranged from 84.8% at T1 to 84.1% at T3. After one year of follow-up, a statistically significant improvement in quality of life ( ≤ 0.05) was observed in all dimensions with the exception of personal relationships. However, there were no changes in the levels of anxiety ( = 0.190) or depression ( = 0.682) at T3 compared to T0. Patients requiring IBC exhibit good treatment adherence, with a significant proportion of them performing self-catheterisation. After one year of IBC, a significant improvement in quality of life was noted, albeit with a significant impact on their daily lives and their personal and social relationships. Patient support programmes could be implemented to improve their ability to cope with difficulties and thus enhance both their quality of life and the maintenance of their adherence.