The Impact of Crohn’s Perianal Fistula on Quality of Life: Results of an International Patient Survey

Abstract Background Crohn’s perianal fistula is a disabling manifestation of Crohn’s disease. However, the additional burden of perianal fistula on patients with only Crohn’s disease remains to be addressed. This patient-reported survey considered outcomes of two domains: “diagnosis” (eg, symptoms)...

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Bibliographic Details
Published in:Crohn's & colitis 360 2023-07, Vol.5 (3), p.otad036-otad036
Main Authors: Spinelli, Antonino, Yanai, Henit, Girardi, Paolo, Milicevic, Slobodan, Carvello, Michele, Maroli, Annalisa, Avedano, Luisa
Format: Article
Language:English
Subjects:
Observations and Research
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Summary:Abstract Background Crohn’s perianal fistula is a disabling manifestation of Crohn’s disease. However, the additional burden of perianal fistula on patients with only Crohn’s disease remains to be addressed. This patient-reported survey considered outcomes of two domains: “diagnosis” (eg, symptoms) and “living with the disease” (eg, quality of life, well-being, and relationships). Methods Patients with perianal fistula and Crohn’s disease completed an online, self-selective, anonymous, 46-item survey available in 11 languages hosted on the European Federation of Crohn’s & Ulcerative Colitis Associations and national patient association websites. The survey was conducted between July and December 2019 in Europe and other regions. Likert scales and closed questions were used to assess outcomes. Results Of the 820 respondents with Crohn’s disease (67.2% women; median age, 40.0 years), 532 (64.9%) reported the presence of perianal fistula. Patients with perianal fistula reported a greater impact on overall quality of life (P 
ISSN:2631-827X
2631-827X
DOI:10.1093/crocol/otad036