Barriers and Facilitators to Home Dialysis Among Latinx Patients with Kidney Disease

• Published in: JAMA network open 2023-08, Vol.6 (8), p.e2328944-e2328944
• Main Authors: Rizzolo, Katherine, Gonzalez Jauregui, Rebeca, Barrientos, Ileana, Teakell, Jade, Camacho, Claudia, Chonchol, Michel, Waikar, Sushrut S, Cervantes, Lilia
• Format: Article
• Language: English
• Subjects: Adult; False information; Female; Hemodialysis; Hemodialysis, Home; Humans; Immigration policy; Kidney Diseases; Kidney Failure, Chronic - therapy; Male; Nephrology; Online Only; Original Investigation; Renal Dialysis; Renal Insufficiency
• ISSN: 2574-3805; 2574-3805
• DOI: 10.1001/jamanetworkopen.2023.28944

Latinx people have a high burden of kidney disease but are less likely to receive home dialysis compared to non-Latinx White people. The disparity in home dialysis therapy has not been completely explained by demographic, medical, or social factors. To understand the barriers and facilitators to home dialysis therapy experienced by Latinx individuals with kidney failure receiving home dialysis. This qualitative study used semistructured interviews with Latinx adults with kidney failure receiving home dialysis therapy in Denver, Colorado, and Houston, Texas, between November 2021 and March 2023. Patients were recruited from home dialysis clinics affiliated with academic medical centers. Of 39 individuals approached, 27 were included in the study. Interviews were audio-recorded, transcribed verbatim, and analyzed using thematic analysis. Themes and subthemes regarding barriers and facilitators to home dialysis therapy. A total of 27 Latinx adults (17 [63%] female and 10 [37%] male) with kidney failure who were receiving home dialysis participated. Themes and subthemes were identified, 3 related to challenges with home dialysis and 2 related to facilitators. Challenges to home dialysis included misinformation and immigration-related barriers to care (including cultural stigma of dialysis, misinformation regarding chronic disease care, and lack of health insurance due to immigration status), limited dialysis education (including lack of predialysis care, no-nephrologist education, and shared decision-making), and maintenance of home dialysis (including equipment issues, lifestyle restrictions, and anxiety about complications). Facilitators to home dialysis included improved lifestyle (including convenience, autonomy, physical symptoms, and dietary flexibility) and support (including family involvement, relationships with staff, self-efficacy, and language concordance). Latinx participants in this study who were receiving home dialysis received misinformation and limited education regarding home dialysis, yet were engaged in self-advocacy and reported strong family and clinic support. These findings may inform new strategies aimed at improving access to home dialysis education and uptake for Latinx individuals with kidney disease.