Psycho-Behavioral Characteristics Perceived as Facilitators by Brazilian Adults with Type 1 Diabetes Mellitus in a Public Health Service

Type 1 diabetes imposes a complex and challenging routine on patients and caregivers. Therefore, considering individual experiences and personal facilitators to promote assertive interventions is crucial. However, no studies have addressed these perspectives in the Brazilian adult population. We aim...

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Bibliographic Details
Published in:Healthcare (Basel) 2023-08, Vol.11 (16), p.2300
Main Authors: Pecoli, Priscila Firmino Gonçalves, Rosa, Anderson da Silva, Gabbay, Mônica Andrade Lima, Dib, Sérgio Atala
Format: Article
Language:English
Subjects:
Adults
Care and treatment
Caregivers
Codes
Complications and side effects
Confidentiality
Coping
Data analysis
Diabetes
Endocrinology
Families & family life
Interviews
Management
Medical personnel
Medical research
Participation
Professionals
Psychological aspects
Public health
Qualitative research
Quality of life
Teenagers
Type 1 diabetes
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Summary:Type 1 diabetes imposes a complex and challenging routine on patients and caregivers. Therefore, considering individual experiences and personal facilitators to promote assertive interventions is crucial. However, no studies have addressed these perspectives in the Brazilian adult population. We aimed to identify psycho-behavioral characteristics perceived as facilitators for coping with the condition. We used a biographical method to conduct semi-structured, face-to-face, in-depth interviews for each participant. Transcripts were analyzed using inductive thematic analysis. Participants (n = 22) were aged 18–57 years (mean: 30.2; standard deviation (SD): 8.7), and the duration since diagnosis was approximately 20.6 years (SD: 4.6). A total of 12 (54.4%) were women, 13 (59.1%) used insulin pumps, 14 (63.6%) had at least a college degree, and 13 (59.1%) had HbA1C (glycated hemoglobin) levels above 58 mmol/mol (7.5%). Five major themes emerged: (1) peer learning, (2) ownership, (3) welcoming experiences, (4) equity, and (5) reframing the path (P.O.W.E.R.). All themes appeared in the lived experiences shared by participants with HbA1C levels below 58 mmol/mol (7.5%). Improved glycemic control can be achieved, and the challenges encountered in diabetes care within similar socioeconomic contexts can be addressed by an interdisciplinary care team that takes P.O.W.E.R. into consideration when providing person-centered care strategies.
ISSN:2227-9032
2227-9032
DOI:10.3390/healthcare11162300