Barriers to Referral and Evaluation and Corresponding Navigation Services for Toddlers Screening Positive for Autism Spectrum Disorder

Introduction: Children from disadvantaged populations receive referrals, diagnoses, and services for autism spectrum disorder (ASD) late or not at all. We describe barriers to referral for and receipt of evaluation for ASD among young children from disadvantaged families and activities by autism fam...

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Published in:Families systems & health 2023-09, Vol.41 (3), p.342-357
Main Authors: Hightshoe, Kristina, Gutiérrez-Raghunath, Silvia, Tomcho, Margaret M., Robinson Rosenberg, Cordelia, Rosenberg, Steven A., Dooling-Litfin, Jodi K., Cordova, Jeanette M., Colborn, Kathryn, DiGuiseppi, Carolyn
Format: Article
Language:English
Subjects:
Autism
Autism Spectrum Disorder - diagnosis
Autism Spectrum Disorder - therapy
Autism Spectrum Disorders
Child, Preschool
Children & youth
Databases, Factual
Disadvantaged
Educational Status
Family
Health care
Health Facilities
Human
Humans
Latinos/Latinas
Medical screening
Referral and Consultation
Screening
Test Construction
Toddlers
Treatment Barriers
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Summary:Introduction: Children from disadvantaged populations receive referrals, diagnoses, and services for autism spectrum disorder (ASD) late or not at all. We describe barriers to referral for and receipt of evaluation for ASD among young children from disadvantaged families and activities by autism family navigators (AFNs) to address these barriers. Method: Trained AFNs offered navigation to families of children aged 16-30 months with positive ASD screens from community health center clinics in 2015-2018. AFNs interviewed families to identify perceived barriers to care and documented system barriers and navigation activities. We coded, categorized, and described barriers and AFN activities. Case studies illustrate barriers and navigation activities. Results: Of 22 participating mothers, 82% were Latinx and 64% were native Spanish-speaking; 71% had household incomes
ISSN:1091-7527
1939-0602
1939-0602
DOI:10.1037/fsh0000786