Analysis of action planning, achievement and life purpose statements in an intervention to support caregivers of persons with heart failure

• Published in: Heart & lung 2023-09, Vol.61, p.8-15
• Main Authors: Abshire Saylor, Martha, Clair, Catherine A, Curriero, Samantha, DeGroot, Lyndsay, Nelson, Katie, Pavlovic, Noelle, Taylor, Janiece, Gallo, Joseph J., Szanton, Sarah
• Format: Article
• Language: English
• Subjects: Aged; Caregiver; Caregivers; Female; Heart failure; Heart Failure - therapy; Humans; Life purpose; Male; Middle Aged; Motivation; Self Care; Social Support
• ISSN: 0147-9563; 1527-3288; 1527-3288
• DOI: 10.1016/j.hrtlng.2023.04.002

•Caregivers created action plans and life purpose statements in the caregiver support intervention.•Action plans and life purpose statements highlighted diverse needs and values.•Person-centered support could be beneficial for caregivers in the future. Caregivers of persons living with heart failure (HF) experience uncertainty related to heart failure trajectory and caregiving demands. Caregiver Support is a nurse-led intervention consisting of a well-being assessment, development of a life purpose statement, and action planning related to self-care and support for caregivers. The goal of this study was to describe the caregivers’ action plans, action plan achievement and life purpose statements. We used inductive content analysis to code life purpose statements and action plans by 2 coders. Descriptive statistics were used to describe the average number of action plans set per caregiver, the average number of themes coded per action plan and life purpose statement, and the status of goal achievement (i.e., by thematic domain, subdomains). Goal achievement was defined categorically: Achieved, not achieved, and not assessed. The achievement rate was calculated as the proportion of achieved action plans out of the total number of assessed action plans. The sample (n = 22) was predominantly women, spousal caregivers, and an average age of 62±14.2 years. Thirty-six percent of caregivers were Black and 41% reported financial strain. Action plans comprised five categories: personal health and well-being, social support, home environment, instrumental support and other. The most common topics of life purpose statements were faith and self-care/actualization. Of 85 action plans, 69 were assessed and 66.7% were achieved. These findings highlight the diversity of values and needs of caregivers and provides insights for additional person-centered support.