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Social Representation of Dementia and Its Influence on the Search for Early Care by Family Member Caregivers
Introduction: Social representations (SRs) contain 3 dimensions: information, attitude, and field. These affect the recognition of the first symptoms of dementia by the patient’s caregiver. This study focused on the period from the first signs of cognitive difficulties to the diagnosis of dementia....
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| Published in: | American journal of Alzheimer's disease and other dementias 2014-06, Vol.29 (4), p.344-353 |
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| Main Authors: | , , |
| Format: | Article |
| Language: | English |
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| cited_by | cdi_FETCH-LOGICAL-c468t-4237513af91aa57f38fcfce7e7310eeb351d354c98fb99c00df920ab52577eb13 |
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| cites | cdi_FETCH-LOGICAL-c468t-4237513af91aa57f38fcfce7e7310eeb351d354c98fb99c00df920ab52577eb13 |
| container_end_page | 353 |
| container_issue | 4 |
| container_start_page | 344 |
| container_title | American journal of Alzheimer's disease and other dementias |
| container_volume | 29 |
| creator | Juárez-Cedillo, Teresa Jarillo-Soto, Edgar C. Rosas-Carrasco, Oscar |
| description | Introduction:
Social representations (SRs) contain 3 dimensions: information, attitude, and field. These affect the recognition of the first symptoms of dementia by the patient’s caregiver. This study focused on the period from the first signs of cognitive difficulties to the diagnosis of dementia.
Methods:
Eight caregivers of elderly patients with dementia were interviewed to construct their SRs regarding dementia and how this influences seeking medical treatment during the first stages of the disease. Social representations were analyzed through a structural focus, based on the content analysis.
Results:
Decision making is related to knowledge about dementia, attitude (emotions and sensitivity), and the concept of the caregiver about the relative with dementia. The results confirm the importance of the symbolic dimension of personal experience in managing care and seeking medical treatment.
Conclusion:
The presence of dementia in the family creates interpersonal dilemmas that caregivers experience. The solutions are framed in the sociocultural context. |
| doi_str_mv | 10.1177/1533317513517041 |
| format | article |
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Social representations (SRs) contain 3 dimensions: information, attitude, and field. These affect the recognition of the first symptoms of dementia by the patient’s caregiver. This study focused on the period from the first signs of cognitive difficulties to the diagnosis of dementia.
Methods:
Eight caregivers of elderly patients with dementia were interviewed to construct their SRs regarding dementia and how this influences seeking medical treatment during the first stages of the disease. Social representations were analyzed through a structural focus, based on the content analysis.
Results:
Decision making is related to knowledge about dementia, attitude (emotions and sensitivity), and the concept of the caregiver about the relative with dementia. The results confirm the importance of the symbolic dimension of personal experience in managing care and seeking medical treatment.
Conclusion:
The presence of dementia in the family creates interpersonal dilemmas that caregivers experience. The solutions are framed in the sociocultural context.</description><identifier>ISSN: 1533-3175</identifier><identifier>EISSN: 1938-2731</identifier><identifier>DOI: 10.1177/1533317513517041</identifier><identifier>PMID: 24370619</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Aged ; Caregivers - psychology ; Current Topics in Research ; Dementia - nursing ; Family - psychology ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Middle Aged ; Patient Acceptance of Health Care</subject><ispartof>American journal of Alzheimer's disease and other dementias, 2014-06, Vol.29 (4), p.344-353</ispartof><rights>The Author(s) 2013</rights><rights>The Author(s) 2013.</rights><rights>The Author(s) 2013 2013 SAGE Publications</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c468t-4237513af91aa57f38fcfce7e7310eeb351d354c98fb99c00df920ab52577eb13</citedby><cites>FETCH-LOGICAL-c468t-4237513af91aa57f38fcfce7e7310eeb351d354c98fb99c00df920ab52577eb13</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC10852701/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC10852701/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,727,780,784,885,21965,27852,27923,27924,44944,45332,53790,53792</link.rule.ids><linktorsrc>$$Uhttps://journals.sagepub.com/doi/full/10.1177/1533317513517041?utm_source=summon&utm_medium=discovery-provider$$EView_record_in_SAGE_Publications$$FView_record_in_$$GSAGE_Publications</linktorsrc><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24370619$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Juárez-Cedillo, Teresa</creatorcontrib><creatorcontrib>Jarillo-Soto, Edgar C.</creatorcontrib><creatorcontrib>Rosas-Carrasco, Oscar</creatorcontrib><title>Social Representation of Dementia and Its Influence on the Search for Early Care by Family Member Caregivers</title><title>American journal of Alzheimer's disease and other dementias</title><addtitle>Am J Alzheimers Dis Other Demen</addtitle><description>Introduction:
Social representations (SRs) contain 3 dimensions: information, attitude, and field. These affect the recognition of the first symptoms of dementia by the patient’s caregiver. This study focused on the period from the first signs of cognitive difficulties to the diagnosis of dementia.
Methods:
Eight caregivers of elderly patients with dementia were interviewed to construct their SRs regarding dementia and how this influences seeking medical treatment during the first stages of the disease. Social representations were analyzed through a structural focus, based on the content analysis.
Results:
Decision making is related to knowledge about dementia, attitude (emotions and sensitivity), and the concept of the caregiver about the relative with dementia. The results confirm the importance of the symbolic dimension of personal experience in managing care and seeking medical treatment.
Conclusion:
The presence of dementia in the family creates interpersonal dilemmas that caregivers experience. The solutions are framed in the sociocultural context.</description><subject>Aged</subject><subject>Caregivers - psychology</subject><subject>Current Topics in Research</subject><subject>Dementia - nursing</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Humans</subject><subject>Middle Aged</subject><subject>Patient Acceptance of Health Care</subject><issn>1533-3175</issn><issn>1938-2731</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><recordid>eNqNkUFv1DAQhS0EoqVw54R85BLwxPHaOSG0belKRUgUztbEO951lcSLnVTaf4-XbStAQuJkj983T_M8jL0G8Q5A6_egpJSgFUgFWjTwhJ1CK01VawlPy73I1UE_YS9yvhWiUcaI5-ykbqQWC2hPWX8TXcCef6VdokzjhFOII4-en9NQyoAcxzVfTZmvRt_PNDriBZi2xG8Ik9tyHxO_wNTv-RIT8W7PL3EIpfxMQ0fp1-sm3FHKL9kzj32mV_fnGft-efFteVVdf_m0Wn68rlyzMFPV1PIQCX0LiEp7abzzjjSVVIKoK2HXUjWuNb5rWyfE2re1wE7VSmvqQJ6xD0ff3dwNtHYlR8Le7lIYMO1txGD_VMawtZt4Z0EYVWtxcHh775Dij5nyZIeQHfU9jhTnbEEb2dZQ6-Y_UL1YNAaELKg4oi7FnBP5x5FA2MNC7d8LLS1vfo_y2PCwwQJURyDjhuxtnNNYvvbfhj8B90OoXg</recordid><startdate>20140601</startdate><enddate>20140601</enddate><creator>Juárez-Cedillo, Teresa</creator><creator>Jarillo-Soto, Edgar C.</creator><creator>Rosas-Carrasco, Oscar</creator><general>SAGE Publications</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7TK</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20140601</creationdate><title>Social Representation of Dementia and Its Influence on the Search for Early Care by Family Member Caregivers</title><author>Juárez-Cedillo, Teresa ; Jarillo-Soto, Edgar C. ; Rosas-Carrasco, Oscar</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c468t-4237513af91aa57f38fcfce7e7310eeb351d354c98fb99c00df920ab52577eb13</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>Aged</topic><topic>Caregivers - psychology</topic><topic>Current Topics in Research</topic><topic>Dementia - nursing</topic><topic>Family - psychology</topic><topic>Female</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Humans</topic><topic>Middle Aged</topic><topic>Patient Acceptance of Health Care</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Juárez-Cedillo, Teresa</creatorcontrib><creatorcontrib>Jarillo-Soto, Edgar C.</creatorcontrib><creatorcontrib>Rosas-Carrasco, Oscar</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Neurosciences Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>American journal of Alzheimer's disease and other dementias</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext_linktorsrc</fulltext></delivery><addata><au>Juárez-Cedillo, Teresa</au><au>Jarillo-Soto, Edgar C.</au><au>Rosas-Carrasco, Oscar</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Social Representation of Dementia and Its Influence on the Search for Early Care by Family Member Caregivers</atitle><jtitle>American journal of Alzheimer's disease and other dementias</jtitle><addtitle>Am J Alzheimers Dis Other Demen</addtitle><date>2014-06-01</date><risdate>2014</risdate><volume>29</volume><issue>4</issue><spage>344</spage><epage>353</epage><pages>344-353</pages><issn>1533-3175</issn><eissn>1938-2731</eissn><abstract>Introduction:
Social representations (SRs) contain 3 dimensions: information, attitude, and field. These affect the recognition of the first symptoms of dementia by the patient’s caregiver. This study focused on the period from the first signs of cognitive difficulties to the diagnosis of dementia.
Methods:
Eight caregivers of elderly patients with dementia were interviewed to construct their SRs regarding dementia and how this influences seeking medical treatment during the first stages of the disease. Social representations were analyzed through a structural focus, based on the content analysis.
Results:
Decision making is related to knowledge about dementia, attitude (emotions and sensitivity), and the concept of the caregiver about the relative with dementia. The results confirm the importance of the symbolic dimension of personal experience in managing care and seeking medical treatment.
Conclusion:
The presence of dementia in the family creates interpersonal dilemmas that caregivers experience. The solutions are framed in the sociocultural context.</abstract><cop>Los Angeles, CA</cop><pub>SAGE Publications</pub><pmid>24370619</pmid><doi>10.1177/1533317513517041</doi><tpages>10</tpages><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 1533-3175 |
| ispartof | American journal of Alzheimer's disease and other dementias, 2014-06, Vol.29 (4), p.344-353 |
| issn | 1533-3175 1938-2731 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10852701 |
| source | SAGE Open Access |
| subjects | Aged Caregivers - psychology Current Topics in Research Dementia - nursing Family - psychology Female Health Knowledge, Attitudes, Practice Humans Middle Aged Patient Acceptance of Health Care |
| title | Social Representation of Dementia and Its Influence on the Search for Early Care by Family Member Caregivers |
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