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Definitions of recovery and reintegration across the first year: A qualitative study of perspectives of persons with spinal cord injury and caregivers
Study Design Longitudinal, qualitative cohort study. Objectives To understand how people with newly acquired spinal cord injury (PWS) and their support person (SP) define recovery and successful community reintegration (CR) across the first 12 months post-injury (mpi) and their satisfaction with the...
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Published in: | Spinal cord 2024-04, Vol.62 (4), p.156-163 |
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creator | Anderson, Kim D. Bryden, Anne M. Gran, Brian Hinze, Susan W. Richmond, Mary Ann |
description | Study Design
Longitudinal, qualitative cohort study.
Objectives
To understand how people with newly acquired spinal cord injury (PWS) and their support person (SP) define recovery and successful community reintegration (CR) across the first 12 months post-injury (mpi) and their satisfaction with the rate of recovery and reintegration experienced.
Setting
Academic and Veterans hospitals in Midwest USA.
Methods
In-depth, semi-structured interviews were conducted in two cohorts of PWS and SP during the initial inpatient rehabilitation stay, at 6 mpi, and at 12 mpi. Recordings were transcribed; four authors independently undertook line-by-line coding. The team discussed codes to reach consensus and synthesize into broader themes within the International Classification of Function, Disability, and Health and Transformative frameworks.
Results
Data are reported on 23 PWS and 21 SP. PWS and SP are similar in defining recovery as gaining motor function and achieving independence. However, SP more frequently define recovery in terms of maintaining positivity and emotional recovery. At 12 mpi both groups shift to define recovery according to progress. Social roles, being active, and employment are persistent themes of how PWS and SP define successful CR. However, SP also frequently define successful CR as reestablishing identity and emotional adjustment. Veterans with SCI less frequently defined successful CR as employment.
Conclusions
This study is the first to reveal how PWS and SP define recovery and reintegration during the first 12 mpi. Given decreasing lengths of stay, this information can be used to tailor rehabilitation strategies during the critical first year of injury to optimize recovery. |
doi_str_mv | 10.1038/s41393-024-00962-1 |
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Longitudinal, qualitative cohort study.
Objectives
To understand how people with newly acquired spinal cord injury (PWS) and their support person (SP) define recovery and successful community reintegration (CR) across the first 12 months post-injury (mpi) and their satisfaction with the rate of recovery and reintegration experienced.
Setting
Academic and Veterans hospitals in Midwest USA.
Methods
In-depth, semi-structured interviews were conducted in two cohorts of PWS and SP during the initial inpatient rehabilitation stay, at 6 mpi, and at 12 mpi. Recordings were transcribed; four authors independently undertook line-by-line coding. The team discussed codes to reach consensus and synthesize into broader themes within the International Classification of Function, Disability, and Health and Transformative frameworks.
Results
Data are reported on 23 PWS and 21 SP. PWS and SP are similar in defining recovery as gaining motor function and achieving independence. However, SP more frequently define recovery in terms of maintaining positivity and emotional recovery. At 12 mpi both groups shift to define recovery according to progress. Social roles, being active, and employment are persistent themes of how PWS and SP define successful CR. However, SP also frequently define successful CR as reestablishing identity and emotional adjustment. Veterans with SCI less frequently defined successful CR as employment.
Conclusions
This study is the first to reveal how PWS and SP define recovery and reintegration during the first 12 mpi. Given decreasing lengths of stay, this information can be used to tailor rehabilitation strategies during the critical first year of injury to optimize recovery.</description><identifier>ISSN: 1362-4393</identifier><identifier>EISSN: 1476-5624</identifier><identifier>DOI: 10.1038/s41393-024-00962-1</identifier><identifier>PMID: 38351327</identifier><language>eng</language><publisher>London: Nature Publishing Group UK</publisher><subject>692/308/409 ; 692/617/375/1824 ; Anatomy ; Biomedical and Life Sciences ; Biomedicine ; Emotions ; Human Physiology ; Neurochemistry ; Neuropsychology ; Neurosciences ; Qualitative research ; Recovery ; Rehabilitation ; Spinal cord injuries</subject><ispartof>Spinal cord, 2024-04, Vol.62 (4), p.156-163</ispartof><rights>The Author(s) 2024</rights><rights>2024. The Author(s).</rights><rights>The Author(s) 2024. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c426t-39a2663af7769c272c1a5bb699acea29f8956c789b65d9f6844f2cedc0dd7e1f3</cites><orcidid>0000-0001-9252-161X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/38351327$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Anderson, Kim D.</creatorcontrib><creatorcontrib>Bryden, Anne M.</creatorcontrib><creatorcontrib>Gran, Brian</creatorcontrib><creatorcontrib>Hinze, Susan W.</creatorcontrib><creatorcontrib>Richmond, Mary Ann</creatorcontrib><title>Definitions of recovery and reintegration across the first year: A qualitative study of perspectives of persons with spinal cord injury and caregivers</title><title>Spinal cord</title><addtitle>Spinal Cord</addtitle><addtitle>Spinal Cord</addtitle><description>Study Design
Longitudinal, qualitative cohort study.
Objectives
To understand how people with newly acquired spinal cord injury (PWS) and their support person (SP) define recovery and successful community reintegration (CR) across the first 12 months post-injury (mpi) and their satisfaction with the rate of recovery and reintegration experienced.
Setting
Academic and Veterans hospitals in Midwest USA.
Methods
In-depth, semi-structured interviews were conducted in two cohorts of PWS and SP during the initial inpatient rehabilitation stay, at 6 mpi, and at 12 mpi. Recordings were transcribed; four authors independently undertook line-by-line coding. The team discussed codes to reach consensus and synthesize into broader themes within the International Classification of Function, Disability, and Health and Transformative frameworks.
Results
Data are reported on 23 PWS and 21 SP. PWS and SP are similar in defining recovery as gaining motor function and achieving independence. However, SP more frequently define recovery in terms of maintaining positivity and emotional recovery. At 12 mpi both groups shift to define recovery according to progress. Social roles, being active, and employment are persistent themes of how PWS and SP define successful CR. However, SP also frequently define successful CR as reestablishing identity and emotional adjustment. Veterans with SCI less frequently defined successful CR as employment.
Conclusions
This study is the first to reveal how PWS and SP define recovery and reintegration during the first 12 mpi. Given decreasing lengths of stay, this information can be used to tailor rehabilitation strategies during the critical first year of injury to optimize recovery.</description><subject>692/308/409</subject><subject>692/617/375/1824</subject><subject>Anatomy</subject><subject>Biomedical and Life Sciences</subject><subject>Biomedicine</subject><subject>Emotions</subject><subject>Human Physiology</subject><subject>Neurochemistry</subject><subject>Neuropsychology</subject><subject>Neurosciences</subject><subject>Qualitative research</subject><subject>Recovery</subject><subject>Rehabilitation</subject><subject>Spinal cord injuries</subject><issn>1362-4393</issn><issn>1476-5624</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><recordid>eNp9kU2PFCEQhonRuOvqH_BgSLx4aeWr6caL2ayfySZe9EwYuphh0gO9QI-ZP-Lvld6ZXT8OnqCqnnoL6kXoOSWvKeH9mywoV7whTDSEKMka-gCdU9HJppVMPKx3XpOiMmfoSc5bUimq-sfojPe8pZx15-jne3A--OJjyDg6nMDGPaQDNmGogQ8F1sksZWxsijnjsgHsfMoFH8Ckt_gS38xm9KVCe8C5zMNhEZog5Qnsksx38TLjhy8bnCcfzIhtTAP2YTuf5lmTYF0bUn6KHjkzZnh2Oi_Q948fvl19bq6_fvpydXndWMFkabgyTEpuXNdJZVnHLDXtaiWVMhYMU65XrbRdr1ayHZSTvRCOWRgsGYYOqOMX6N1Rd5pXu5qHUJIZ9ZT8zqSDjsbrvyvBb_Q67jWlpFog26rw6qSQ4s0MueidzxbG0QSIc9ZMMdlSJfoFffkPuo1zqovImhMuesE5ZZViR-p23Qnc_Wso0Yvv-ui7rr7rW981rU0v_vzHfcud0RXgRyDXUlhD-j37P7K_AN0AvVM</recordid><startdate>20240401</startdate><enddate>20240401</enddate><creator>Anderson, Kim D.</creator><creator>Bryden, Anne M.</creator><creator>Gran, Brian</creator><creator>Hinze, Susan W.</creator><creator>Richmond, Mary Ann</creator><general>Nature Publishing Group UK</general><general>Nature Publishing Group</general><scope>C6C</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QL</scope><scope>7T7</scope><scope>7TK</scope><scope>7U9</scope><scope>8FD</scope><scope>C1K</scope><scope>FR3</scope><scope>H94</scope><scope>K9.</scope><scope>M7N</scope><scope>NAPCQ</scope><scope>P64</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0001-9252-161X</orcidid></search><sort><creationdate>20240401</creationdate><title>Definitions of recovery and reintegration across the first year: A qualitative study of perspectives of persons with spinal cord injury and caregivers</title><author>Anderson, Kim D. ; Bryden, Anne M. ; Gran, Brian ; Hinze, Susan W. ; Richmond, Mary Ann</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c426t-39a2663af7769c272c1a5bb699acea29f8956c789b65d9f6844f2cedc0dd7e1f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>692/308/409</topic><topic>692/617/375/1824</topic><topic>Anatomy</topic><topic>Biomedical and Life Sciences</topic><topic>Biomedicine</topic><topic>Emotions</topic><topic>Human Physiology</topic><topic>Neurochemistry</topic><topic>Neuropsychology</topic><topic>Neurosciences</topic><topic>Qualitative research</topic><topic>Recovery</topic><topic>Rehabilitation</topic><topic>Spinal cord injuries</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Anderson, Kim D.</creatorcontrib><creatorcontrib>Bryden, Anne M.</creatorcontrib><creatorcontrib>Gran, Brian</creatorcontrib><creatorcontrib>Hinze, Susan W.</creatorcontrib><creatorcontrib>Richmond, Mary Ann</creatorcontrib><collection>Springer Nature OA Free Journals</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Bacteriology Abstracts (Microbiology B)</collection><collection>Industrial and Applied Microbiology Abstracts (Microbiology A)</collection><collection>Neurosciences Abstracts</collection><collection>Virology and AIDS Abstracts</collection><collection>Technology Research Database</collection><collection>Environmental Sciences and Pollution Management</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Nursing & Allied Health Premium</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Spinal cord</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Anderson, Kim D.</au><au>Bryden, Anne M.</au><au>Gran, Brian</au><au>Hinze, Susan W.</au><au>Richmond, Mary Ann</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Definitions of recovery and reintegration across the first year: A qualitative study of perspectives of persons with spinal cord injury and caregivers</atitle><jtitle>Spinal cord</jtitle><stitle>Spinal Cord</stitle><addtitle>Spinal Cord</addtitle><date>2024-04-01</date><risdate>2024</risdate><volume>62</volume><issue>4</issue><spage>156</spage><epage>163</epage><pages>156-163</pages><issn>1362-4393</issn><eissn>1476-5624</eissn><abstract>Study Design
Longitudinal, qualitative cohort study.
Objectives
To understand how people with newly acquired spinal cord injury (PWS) and their support person (SP) define recovery and successful community reintegration (CR) across the first 12 months post-injury (mpi) and their satisfaction with the rate of recovery and reintegration experienced.
Setting
Academic and Veterans hospitals in Midwest USA.
Methods
In-depth, semi-structured interviews were conducted in two cohorts of PWS and SP during the initial inpatient rehabilitation stay, at 6 mpi, and at 12 mpi. Recordings were transcribed; four authors independently undertook line-by-line coding. The team discussed codes to reach consensus and synthesize into broader themes within the International Classification of Function, Disability, and Health and Transformative frameworks.
Results
Data are reported on 23 PWS and 21 SP. PWS and SP are similar in defining recovery as gaining motor function and achieving independence. However, SP more frequently define recovery in terms of maintaining positivity and emotional recovery. At 12 mpi both groups shift to define recovery according to progress. Social roles, being active, and employment are persistent themes of how PWS and SP define successful CR. However, SP also frequently define successful CR as reestablishing identity and emotional adjustment. Veterans with SCI less frequently defined successful CR as employment.
Conclusions
This study is the first to reveal how PWS and SP define recovery and reintegration during the first 12 mpi. Given decreasing lengths of stay, this information can be used to tailor rehabilitation strategies during the critical first year of injury to optimize recovery.</abstract><cop>London</cop><pub>Nature Publishing Group UK</pub><pmid>38351327</pmid><doi>10.1038/s41393-024-00962-1</doi><tpages>8</tpages><orcidid>https://orcid.org/0000-0001-9252-161X</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | 692/308/409 692/617/375/1824 Anatomy Biomedical and Life Sciences Biomedicine Emotions Human Physiology Neurochemistry Neuropsychology Neurosciences Qualitative research Recovery Rehabilitation Spinal cord injuries |
title | Definitions of recovery and reintegration across the first year: A qualitative study of perspectives of persons with spinal cord injury and caregivers |
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